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  1. Ash

    Jo Daniels (on CBT, ME/CFS and Long Covid)

    Not-so-Dear researchers, “at least in part” Really? Show us your evidence? yours patiently All of us.
  2. Ash

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Yes @Tia this is upsetting. So many potential treatments, but without rigorous testing we don’t know who or whether they help.
  3. Ash

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    https://www.itv.com/news/meridian/2021-12-21/long-covid-has-cost-me-6000-and-left-me-close-to-taking-my-own-life
  4. Ash

    Gary Burgess - The ME show, and updates about Gary's health.

    Dear Gary & Alan my warmest Christmas messages to you both! :emoji_christmas_tree::emoji_christmas_tree::emoji_christmas_tree::emoji_christmas_tree::emoji_christmas_tree::emoji_christmas_tree::emoji_christmas_tree::emoji_christmas_tree: Gary thank you so much for all you have done for our...
  5. Ash

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    That is why I doubt that many of those Drs out there actually believe the diagnosis they give out. I think it’s very often a power move. Just because they can. How can we presume good faith when they know how we will be treated by their colleges when labeled with psychiatric illness? I...
  6. Ash

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    It is so cruel and unjust. The power of one man’s prejudice to mark you for a life of care denied. It doesn’t matter if you were all the labels he gave, you still would require care to keep your body and mind as healthy as possible. If you had the problems suggested why did it take so long to...
  7. Ash

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    :emoji_bouquet: That is absolutely tragic. Her last months spent suffering awful pain and being abused by people who’s job it was to offer care. I am so sorry. Presumption prejudice bias misogyny sexism ableism sanism* in Drs leads to poor health outcomes, including to ptsd depression...
  8. Ash

    Diana And Alex Klurfeld Launch New Awareness Campaign to Include Orphan Diseases (With Klurfeld Cares)

    I haven’t looked at this one. But I have a pretty firm policy not to look at stuff named after founders by themselves :rolleyes::rolleyes: So I am happy to strong agree with you on this one @Trish
  9. Ash

    Diana And Alex Klurfeld Launch New Awareness Campaign to Include Orphan Diseases (With Klurfeld Cares)

    Surprisingly they cover a variety of important under reported stuff on there. They just covered a human rights charity that is bringing a case for Manslaughter, against coastguards in France and UK. For (repeated) failure to respond to SOS calls from people in trouble at sea. In relation the...
  10. Ash

    Esther Crawley

    This is the :heart: of the matter
  11. Ash

    Chronic exposure to polluted urban air aggravates myocardial infarction by impaired cardiac mitochondrial function and dynamics, 2021, Marchini et al

    I do think it’s interesting that we people in many countries, can be convinced to allow the very air we breathe to be poisoned and still we support the poisoners over the poisoned.
  12. Ash

    Chronic exposure to polluted urban air aggravates myocardial infarction by impaired cardiac mitochondrial function and dynamics, 2021, Marchini et al

    Yeah it’s the whole let’s make sure the polluters don’t pay, isn’t it? Infectious disease? Well should be more careful. Need treatment cause you can’t work and you’re very sick? So sorry should of been richer shouldn’t you? Hardly anyone believes that one’s psychological condition has...
  13. Ash

    Chronic exposure to polluted urban air aggravates myocardial infarction by impaired cardiac mitochondrial function and dynamics, 2021, Marchini et al

    Pollution :skull: through many routes scares me a lot…
  14. Ash

    BPS attempts at psychologizing Long Covid

    :emoji_imp:
  15. Ash

    BPS attempts at psychologizing Long Covid

    Do you have a screen shot of the deleted tweet?
  16. Ash

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Sounds great from the chapter headings. Thanks @Andy
  17. Ash

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I don’t know the of details the exact conflicts of motivation behind large ME charities. I expect these are many a twist and turn. The broader context seems relevant. No matter how hard many individuals within these charities may work, or how well intentioned this work may be, it is not...
  18. Ash

    The maintained attention assessment in patients affected by [ME/CFS]: a reliable biomarker?, Murga et al, 2021

    I have overstretched myself reading or attempting to forum posts in recent months. Started with NICE stuff and relatedly looking at BPS up close again. This area of politics has direct consequences for my day to day life. So unpleasant as it is I find it necessary to re engage at intervals...
  19. Ash

    Article Express: ‘I lost half my blood’: Woman recalls diagnosis of ‘mystery illness’ - it affects millions

    Thanks all!
  20. Ash

    Article Express: ‘I lost half my blood’: Woman recalls diagnosis of ‘mystery illness’ - it affects millions

    I am too I’ll to read this but why and how, did she “lose half her blood” ?
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