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Thank you @PhysiosforME

:thumbup:Nice one @Karen Kirke

Agree @Barry the NICE guidelines manual makes it clear that different types of response will be received and that all points should be considered https://www.nice.org.uk/process/pmg6/chapter/the-consultation-process-and-dealing-with-stakeholder-comments

Ugh

A number of posts about the Warwick University REGAIN trial of exercise and psychological support for people who have had Covid 19 have been moved to a new thread...

I think a lot of us realise a change to the NICE guidelines isn’t going to of itself result in some kind of root and branch overhaul of how people with ME are dealt with or not dealt with by the NHS @Suffolkres. It is about removing that particular excuse for not changing the status quo. Other...

Apologies if you’re already aware @PhysiosforME tagging just in case you’ve not seen

I like the title. Hopefully some people who assume the answer is yes will read it and have their eyes opened to a different perspective.

Hi @Suffolkres the link to the document doesn’t work for me

Good grief how many questionnaires what’s the protocol on questionnaires. Once it is published is it out there public free access or do researchers have to pay a fee to use it. Can you like a piece of music say you don’t want your questionnaire used in a piece of research. asking as I...

Well done @Tom Kindlon

That would be good if someone has the patience. Not a job for me.

Spot on. Didn’t finish it - ugh

I think it’s a great idea to target fundraising on this project which is pretty significant to inform what happens after the new NICE guidelines come out.

Like @Mithriel i found the set up at my GP surgery for the flu vaccine very well thought out and if I’m invited back there for CV19 jabs I will definitely go. Luckily it is only a mile down the road so within my drive myself capability. I’m assuming all the staff involved in doing the jabs...

Thanks to those who contributed

Good idea. It would also be interesting to see some research into the effects of having to live with ME on those of us who live in single person households.

:wtf: He needs to have a word with himself.

This.

Good news