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Why they would think doing this for 15 days just demonstrates how clueless they are before you even get to the specifics :banghead:

Well done. I won’t download the full paper as I prefer to leave access to people with more brain power than me but I really appreciate your work and I found the abstract informative.

Obviously they have their set process. Given some of their stakeholders are long covid patients who will be struggling with the symptoms of the illness they may be failing to fulfil their duty to provide reasonable adjustment by not adapting their consultation process.

What % of the general population has stiffness of cervical muscles. Very common among people who work sat in front of a computer screen.

So if people did better when allowed to sleep undisturbed why push people into so called sleep hygiene dictating when they should and shouldn’t sleep

How tedious- the word salad has been tossed yet again

This thread is no longer fully moderated.

:rofl:

I was just concerned about pointing any ally to a website where they might find negative content about ME. Even if the U.K. SMC had useful general content about understanding science research I would never link to it.

Are the NZ SMC linked to the U.K. one?.

Seems to me from re reading this thread that @Sly Saint has hit the nail on the head. BACME people need tto say that they have moved on from deconditioning as perpetuating ME. Until that is made clear we can assume everything they say about deconditioning is fudging.

The Aussies are up to this rubbish as well then :mad:

Would it not be linked to hospitalisation? if you’ve been hospitalised 1&2 would apply if not and you have prolonged illness following a less severe initial illness 3 would apply?

Excellent letters @Robert 1973 and @Andy thanks for your efforts.

I don’t have really bad pain so I get by with paracetamol. I also take CBD at night. I have low dose pregabalin on my prescription but stopped taking them 2 years ago due to side effects exceeding benefit. If I have a flu symptoms episode the paracetamol wears off before I can take...

Yes I take the 1mg too

Agree this is an excellent point @Andy. I think it makes sense to show it can be done. And I feel that MHRA are unlikely to do anything about reporting of harms from physical or psychological therapy ‘merely’ for ME as that would set some kind of precedent opening them up to massive numbers...

Ok so the the Parsons based beliefs sum up as We like the “good” patients who are happy to gaslight themselves....... I wonder if the study participants were aware of the perspective being taken by the researchers?

So if he’s been doing this why couldn’t he sort out the PACE data that wasn’t possible due to being retired.

I take over the counter melatonin I buy from the USA I have to be careful with or preferably avoid anything sedating as I really get knocked out by them and also the hangover persists