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  1. NelliePledge

    Skeletal Muscle Dysfunction. The Harvard ME/CFS Collaboration at Harvard-Affiliated Hospitals

    Yes this is what the British researchers at Nottingham and Birmingham will be involved in
  2. NelliePledge

    MS research versus ME/CFS research

    Yes I think it’s the level of disability being higher in ME than MS that the biobank found in their paper. Presumably that applies across age range. Hard to actually deploy that information to influence people without sounding like we re trying to outdo MS patients tho.
  3. NelliePledge

    MS research versus ME/CFS research

    Had a look on some MS websites apparently MS reduces lifespan by about 5 to 10 years.
  4. NelliePledge

    2020 RNZCGP /WONCA Conference in Auckland, NZ

    Sticking my nose in wondering if Dr Nacul would be a possible option speaker? Maybe too busy with his new job in Canada and ongoing NICE involvement. He had worked with patient group @Suffolkres and were almost successful in getting a physician led service commissioned. So he knows what...
  5. NelliePledge

    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    Ooh Cosmo Quiz style. Nice one Sly Just like doing IAPT CBT ;) My guess is B and C if I’ve only got one choice i have to go for C
  6. NelliePledge

    MS research versus ME/CFS research

    From very brief research I read onset of MS was between 20-50. Onset (or at least diagnosis) of ME is a broad spread from children to older people with peaks in 20s and 40s. There are people with ME who have worked just as there are people with MS who have younger onset and maybe haven’t...
  7. NelliePledge

    How ME/CFS Progresses: A Framework for Research and the Prevention, Treatment, and Rehabilitation in ME/CFS Nacul et al 2019

    As gradual onset likely at least 8 years undiagnosed this is definitely a needle/needles in a haystack situation trying to identify what actually contributed and what was completely irrelevant. You don’t pick up the drip drip worsening as anything remarkable until it has stacked up into...
  8. NelliePledge

    Bone, not adrenaline, drives fight or flight response

    I think a one off stressful thing initially gives me a boost but it’s just the same as any overexertion pay later. And an ongoing stressor definitely had a negative effect.
  9. NelliePledge

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    As you know I’m somewhat cynical ;) My bet is whatever the next announcement or step in this is it is now definitely planned for publication on the website on 31 October :whistle:
  10. NelliePledge

    Fatigue: The Silent Symptom of Parkinson’s Disease

    I must tell my relatives they will think this is hilarious
  11. NelliePledge

    Flower Arranging Helps Reduce Fibromyalgia Pain

    It’s that symptom catastrophising thing Auntie Trudie likes to bang on about innit. Sit and do some nice flowers and think nice thoughts instead of the silly exaggerated ones.......
  12. NelliePledge

    Flexibility exercise training for adults with fibromyalgia Cochrane Systematic Review 2 Sep 2019

    Interesting that they managed to understand that safety is uncertain due to information on adverse events being scarce......
  13. NelliePledge

    Flower Arranging Helps Reduce Fibromyalgia Pain

    But surely they are missing a fundamental question = do the patients bring their own flowers in a shopping bag and how do they feel about carrying them.
  14. NelliePledge

    United Kingdom: National Health Service (NHS) news

    Do psychiatry and psychology put forward such reports about errors they make? If they want to live up to their claim for their side of medicine to be on an equal footing with physicians they should be identifying and publishing their errors.
  15. NelliePledge

    ME/CFS success story: Lightning Process on Youtube 2019

    Wow @DigitalDrifter good job exposing him as totally unscientific.
  16. NelliePledge

    Effectiveness of distant healing for patients with chronic fatigue syndrome, 2008, Walach et al

    Seen a tweet today where MS was having a dig at the US sense about science guy Trevor Butterworth for retweeting something on the latest retraction letters on SMILE. If he defends SMILE he’s defending LP. This is it
  17. NelliePledge

    Dogs Are Dying Suddenly in Norway

    I don’t object to animals but I do find it disheartening that some get better treatment than we do
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