Yes I think it’s the level of disability being higher in ME than MS that the biobank found in their paper. Presumably that applies across age range. Hard to actually deploy that information to influence people without sounding like we re trying to outdo MS patients tho.
Sticking my nose in wondering if Dr Nacul would be a possible option speaker? Maybe too busy with his new job in Canada and ongoing NICE involvement. He had worked with patient group @Suffolkres and were almost successful in getting a physician led service commissioned. So he knows what...
From very brief research I read onset of MS was between 20-50. Onset (or at least diagnosis) of ME is a broad spread from children to older people with peaks in 20s and 40s. There are people with ME who have worked just as there are people with MS who have younger onset and maybe haven’t...
As gradual onset likely at least 8 years undiagnosed this is definitely a needle/needles in a haystack situation trying to identify what actually contributed and what was completely irrelevant. You don’t pick up the drip drip worsening as anything remarkable until it has stacked up into...
I think a one off stressful thing initially gives me a boost but it’s just the same as any overexertion pay later. And an ongoing stressor definitely had a negative effect.
As you know I’m somewhat cynical ;)
My bet is whatever the next announcement or step in this is it is now definitely planned for publication on the website on 31 October :whistle:
It’s that symptom catastrophising thing Auntie Trudie likes to bang on about innit. Sit and do some nice flowers and think nice thoughts instead of the silly exaggerated ones.......
But surely they are missing a fundamental question = do the patients bring their own flowers in a shopping bag and how do they feel about carrying them.
Do psychiatry and psychology put forward such reports about errors they make? If they want to live up to their claim for their side of medicine to be on an equal footing with physicians they should be identifying and publishing their errors.
Seen a tweet today where MS was having a dig at the US sense about science guy Trevor Butterworth for retweeting something on the latest retraction letters on SMILE. If he defends SMILE he’s defending LP. This is it
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