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@BeautifulDay I have to take my husband with me to doctor appointments too. It makes me so angry that it is required. In my case it makes little or no difference to the medical treatment I get (or don't get), but it does at least keep them polite.

Sorry I should have got that one, but my mind went off in a rather odd direction!

From the title of the thread : PR?

This post refers to the post above The original post in this thread has a link to an article in Ms.magazine.com. It didn't work for me. I found a reference to Unrest on that site here : http://msmagazine.com/blog/2017/11/07/a-woman-who-dared-chronic-fatigue-syndrome/

I had this problem. I've managed to reduce it a huge amount with two things : 1) I increased my vitamin B12 level, even though I already had levels which were high in range according to a serum B12 test. I keep my levels very high - and I have no idea whether this is a good idea or a bad idea...

I agree. But I've had doctors telling me most sincerely and with a very earnest expression on their faces that if I'm depressed because I'm ill then taking anti-depressants will fix the underlying illness as well as the depression. The utterly bizarre back-to-front logic behind that would be...

They've done the same in recent years for dementia diagnosis, although I don't think it lasted for very long : http://www.pulsetoday.co.uk/clinical/more-clinical-areas/neurology/gps-to-be-paid-150-to-diagnose-and-treat-dementia/20033565.article With reference to my earlier posts, I should...

@Wonko Doctors don't get paid multiple times for the same depression diagnosis, as far as I know. It is new diagnoses that get them points, not prescribing for an existing diagnosis. And there is a limit to how many points they can claim for. But then I also think that GP surgeries have a fixed...

What is in it for UK doctors you ask? £1712 per new diagnosis of depression. This is worked out as follows : The number of QOF (Quality and Outcomes Framework) points they get for each new diagnosis of depression is shown in this link under the heading of Depression ...

Has he had all the basics looked at? Minerals, vitamins, looking for anaemia of various kinds, full blood count, liver function, kidney function, cortisol & DHEA levels, sex hormones, thyroid hormones (and I don't just mean TSH), thyroid antibodies, H. Pylori, parasites, gut dysbiosis. Edit : Typo

Chronic fatigue syndrome: Changes in brain chemistry found https://www.medicalnewstoday.com/articles/320051.php Doing a search for "Chronic Fatigue Syndrome" on the above website https://www.medicalnewstoday.com/ returns 100 results. It may be of interest, but I'm not up to the task of...

I've never injected B12 but I do supplement with high dose B12 orally, alternating between methylcobalamin and adenosylcobalamin. I found that various things got worse when I first started supplementing - my persistent eczema, my already severe mouth ulcers, and instead of having one or two...

I actually think that in many cases women doctors try to "out-nasty" the men, if you know what I mean. It's a bit like female politicians being tougher than men because they can't afford to be seen to be "soft".

That might explain why a very young child in the UK died of rickets recently : https://www.shropshirestar.com/news/local-hubs/telford/2017/11/07/vitamin-d-is-a-silent-killer---rickets-caused-telford-baby-noahs-death/

From the quote in Cheshire's post https://www.s4me.info/index.php?threads/opinion-on-me-cfs-service-uk.925/ : I expected to be able to have access to things that some people in the ME community have found helpful such as B12 injections People with Pernicious Anaemia (an inability to absorb...

I'll be sorry to lose sci-hub, assuming that it will eventually disappear.

For people who live in the UK you can buy legally buy melatonin without a prescription from abroad, although I have occasionally found it on Ebay being delivered from somewhere in the UK. Doctors can prescribe melatonin, but the BNF (British National Formulary) only recommends it for people...

I don't think the question mark at the end of the thread title is necessary. Just make this thread "A general thread on the PACE trial". :thumbup: :nerd:

I've heard or read that story somewhere too, but can't remember where.

I've been tested for coeliac disease and it came back negative. Several years later I decided to try a gluten-free diet anyway and found it very helpful, so I've stuck with it. I get less pain from my gut, my balance improved, and so did my temper. I've been gluten-free for nearly three years now.