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By Open Medicine Foundation full article here: https://www.sanluisobispo.com/news/state/california/article229756099.html [have looked at the link but can't find the published paper?] eta: link now works this one takes you to where it's listed...

do you mean the Work Related Activity group? If so, they don't make you apply for jobs. The idea is supposedly to get you ready for work. From my experience you need to really hammer home the being able to do things reliably, safely, of a reasonable standard and in a timely manner (or not as...

Denmark 17, Finland 7.......... this is beginning to feel a bit like Eurovision........:emoji_musical_keyboard::emoji_musical_score:

didn't know where to put this; mother (ME sufferer) with young children 'reaching out' for support https://lifewithtwo.home.blog/2019/04/23/being-a-parent-whilst-fighting-your-own-body%f0%9f%91%a3%f0%9f%92%9b/

Article in 'Alliance for natural health' which appears to be selling 'natural products' (ie they appear to be promoting anti 'drug based' treatments). I haven't read all their blurb but no doubt someone will! Nevertheless, good that Jeromes piece is being picked up and particularly criticism of...

"Dr. Rosamund Vallings Talks The Irish ME/CFS Association is pleased to announce that it has arranged for Dr Ros Vallings, a leading international ME expert from New Zealand, to give 5 ME/Chronic Fatigue Syndrome talks in Ireland this May. The talks will include questions-and-answers sessions."...

You Don't Look Sick: 'People say ME isn't real but trust me - it is' By Laura AbernethySunday 28 Apr 2019 9:03 am https://metro.co.uk/2019/04/28/dont-look-sick-people-say-isnt-real-trust-deal-everyday-9328821/ hardly a mention of the 'f' word :)

AfME Millions Missing Bristol 2019 - 11 May April 25, 2019 https://www.actionforme.org.uk/news/millions-missing-bristol-2019-11-may/ I guess this is @phil_in_bristol well done. (don't suppose an invitation has been sent to EC?)

[see thread (with petition) re-amalgamation of testing for both benefits] https://www.s4me.info/threads/dont-merge-the-assessments-for-pip-and-esa-april-2019.9032/ full debate here: https://www.theyworkforyou.com/whall/?id=2019-04-24a.318.4&s=Myalgic+Encephalomyelitis#g324.0

but it's not just a trial.............it's an MS trial (queue music)

taken from another article (from 2015) linked to on the op site https://www.nature.com/news/how-scientists-fool-themselves-and-how-they-can-stop-1.18517

Well I suppose any favourable comments might be deemed as promoting the treatment and introducing bias..... and of course they wouldn't dream of doing that;)

Don't think this has been posted (I hadn't seen it before) ECs Youtube promotion of FITNET (uploaded march 2018) comments are disabled (possibly chronically) eta: see also the F&Q page that might have been posted before...

Dr. Ron Davis of Stanford on the devastating impact of ME/CFS "The patients have been ignored for a very long time. ... If you get ME/CFS your life as you know it is over, and that is really sad because it hits people in the prime of their life. ... It's an extremely serious disease."

re the statins issue (also raised by Burne) uncanny parallels

Moderator note: This post has been copied to start a new thread in the Fundraising subforum here.

Merged thread Simmaron Research fundraising for clinical research including Ampligen