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  1. Andy

    DecodeME - UK ME/CFS DNA study underway

    One of the online test participants
  2. Andy

    International: Science for ME social media posts

    News in Brief for w/c 11th July posts https://www.facebook.com/sci4me/posts/pfbid0aRa4a5JxMR39BJkJQeeRakwYTJchEcArzoEsBfbQM5HQZyDM8HXHvKaQpaUV2xSfl and published papers thread https://www.facebook.com/sci4me/posts/pfbid02SrSEqvd1wvcm96Nspwayfeojd5J4DYvzipzvwBZm45SVDB4ZHJ4MFioLn4iDcghhl
  3. Andy

    SARS-CoV-2 Achieves Immune Escape by Destroying Mitochondrial Quality: Comprehensive Analysis of the Cellular Landscapes..., 2022, Duan et al

    Full title: SARS-CoV-2 Achieves Immune Escape by Destroying Mitochondrial Quality: Comprehensive Analysis of the Cellular Landscapes of Lung and Blood Specimens From Patients With COVID-19 Mitochondria get caught in the crossfire of coronavirus disease 2019 (COVID-19) and antiviral immunity...
  4. Andy

    Real-Time Non-Invasive Monitoring of Short-Chain Fatty Acids in Exhaled Breath, 2022, Meurs et al

    Short-chain fatty acids (SCFAs) are important metabolites produced by the gut microbiome as a result of the fermentation of non-digestible polysaccharides. The most abundant SCFAs are acetic acid, propionic acid, and butyric acid which make up 95% of this group of metabolites in the gut. Whilst...
  5. Andy

    Neurological manifestations of post-COVID-19 syndrome S1-guideline of the German society of neurology, 2022, Franke et al

    "To date there are no established and effective medical treatment options for post-viral fatigue and cognitive impairment, as well as related conditions such as myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). If there are indications of autoimmunity, therapeutic approaches including...
  6. Andy

    Neurological manifestations of post-COVID-19 syndrome S1-guideline of the German society of neurology, 2022, Franke et al

    Abstract Infection with the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) leads to COVID-19 (COrona VIrus Disease-2019). SARS-CoV-2 acute infection may be associated with an increased incidence of neurological manifestations such as encephalopathy and encephalomyelitis, ischemic...
  7. Andy

    The Qigong of Prolong Life With Nine Turn Method Relieve Fatigue, Sleep, Anxiety and Depression in Patients With CFS:, 2022, Xie et al

    Full title: The Qigong of Prolong Life With Nine Turn Method Relieve Fatigue, Sleep, Anxiety and Depression in Patients With Chronic Fatigue Syndrome: A Randomized Controlled Clinical Study Background: Chronic fatigue syndrome (CFS) is a complex disease of unknown etiology and mechanism. The...
  8. Andy

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    Self-reported long COVID after infection with the Omicron variant in the UK: 18 July 2022 1.Main points Of triple-vaccinated adults, 4.5%, 4.2% and 5.0% self-reported having long COVID 12 to 16 weeks after a first laboratory-confirmed coronavirus (COVID-19) infection compatible with the...
  9. Andy

    Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop, 2022

    Possibly Steven Deeks, MD, University of California, San Francisco & Zuckerberg San Francisco General Hospital as he was part of the committee for this. Long-Term Health Effects Stemming from COVID-19 and Implications for the Social Security Administration: A Workshop...
  10. Andy

    International: IACFS/ME - International Association for CFS/ME, IACFSME

    Featured speakers at the upcoming conference Keynote: Akiko Iwasaki, PhD, Sterling Professor, Immunobiologist, Long Covid expert. Yale University School of Medicine Plenary: David Systrom, MD, Pulmonologist, Exercise intolerance in ME/CFS, Long Covid. Harvard Medical School Invited: Lauren...
  11. Andy

    USA: News from #MEAction

    New #MEAction Volunteer Survey "#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their...
  12. Andy

    When It Hurts, a Positive Attitude May Help. The Moderating Effect of Positive Affect ... in Women with Fibromyalgia, 2022, Ecjia et al

    Full title: When It Hurts, a Positive Attitude May Help. The Moderating Effect of Positive Affect on the Relationship Between Walking, Depression, and Symptoms in Women with Fibromyalgia Abstract Background: Increased exercise is a marker of health in fibromyalgia (FM). However, patients...
  13. Andy

    Reducing severe fatigue in patients with diffuse glioma: a study protocol for an RCT on the effect of blended CBT, 2022, Röttgering, Knoop et al

    Abstract Background Fatigue is the most frequent and burdensome symptom of patients with diffuse glioma. It is closely linked to decreased health-related quality of life and symptoms such as depression and sleep disturbances. Currently, there is no evidence-based treatment that targets severe...
  14. Andy

    U.S. News: Chronic Fatigue Syndrome: Symptoms and Treatments

    @Wilhelmina Jenkins , could you flag this article up to the folks in MEAction please (assuming they aren't aware of it already)?
  15. Andy

    Orbito-Frontal Cortex Hypometabolism in Children With Post-COVID Condition (Long COVID): A Preliminary Experience, 2022, Cocciolillo et al

    Abstract We describe 3 children with new-onset neurocognitive problems after coronavirus disease 2019 (COVID-19), that showed, at the brain [18F]-fluorodeoxyglucose positron emission tomography/computed tomography, hypometabolism in the left orbito-frontal region. The voxel-wise analysis...
  16. Andy

    Incidence and Relative Risk of COVID-19 in Adolescents and Youth Compared With Older Adults in 19 US States, Fall 2020, 2022, Schneiderman et al

    Key Points Question How do incidence and relative risk of contracting COVID-19 from the original wild-type SARS-CoV-2 strain in adolescents and youth compare with that in older adults in the US? Findings Results of this cross-sectional study using state health department data from the start...
  17. Andy

    United Kingdom: News from Forward-ME Group

    Details of a meeting between Forward-ME (FME) and the Royal College of General Practitioners (RCGP) to discuss implementation of the new NICE guideline on ME/CFS in primary care have been posted here, UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion and here...
  18. Andy

    "Freakonomics, MD" podcast, episode 45: Could Long Covid Help Treat Other Chronic Illnesses?

    I think scale and the level of political pressure on the issue were important factors in both cases. The scale of funding for LC was only ever going to come from a specific commitment from Congress, whereas the, frankly peanuts level of, funding for the research centres was cobbled together from...
  19. Andy

    "Freakonomics, MD" podcast, episode 45: Could Long Covid Help Treat Other Chronic Illnesses?

    I am certainly no expert on how things work in the US but I believe that Congress had to give the NIH that money specifically for LC research.
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