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This seems to be the main theory among the BPSers on the continent, particularly in Spain. I think those over here like Chalder are picking up on it so I expect we will be hearing a lot more about it soon........particularly in relation to MUS. groan.

Still no responses about the 'mysterious molecule' Davis and his team found in the serum of ME patients? On the other place I mentioned Huntingtons Disease only because I came across it when searching on illnesses where there are problems with energy production (as opposed to ones that have...

The crux of it seems to be Central Sensitization, and reclassification of certain conditions as Bodily distress syndrome: " Implications for new classification •Bodily distress syndrome –Severe (multi-organ system type) –Moderate (single-organ system type) •CP type •GI type (incl. IBS) •MS type...

Well, I've removed the question mark from the thread title.........It was actually meant as an intro to the piece she wrote........not as an actual question. (We really need a 'rhetorical' emoji):muted: eta: did everyone who commented actually read the article?

Ooh, I don't know, could be Crawley speak for 'womanly wiles'.

Shouldn't that have been 'What is new in MY research" ?

I didn't know where to put this, but thought it of interest. From a Bristol Uni magazine in 2013 an article by Esther Crawley. http://www.bristol.ac.uk/media-library/sites/university/migrated/documents/nonesuch6.pdf (pages 15/16 on pdf, 29/30 in mag) Her mission: "‘The aim of my fellowship is...

This was David Tullers blog about it: "Swiss Re has released information about its 2017 “insurance medicine summit,” to be held this coming November. Not surprisingly, Professor White is on the schedule. Although he has retired from his academic position, he apparently continues his work...

I think Peter White was due to speak at this (?) But they seem to have had Per Fink..... Per Fink Head of Research and Chief Physician, The Research Clinic for Functional Disorders, Aarhus University Hospital In 1999, Per Fink started The Research Clinic for Functional Disorders at Aarhus...

Interview with Nigel Speight from 2014 where he talks about some of the cases he was involved in RE PRS, Munchausen by proxy, etc (16 minutes long, Dutch subtitles)

By Melanie Schickedanz "In October, another study was published in the international online journal Plos One , which confirms that the cellular bioenergetics of patients with myalgic encephalomyelitis is impaired. Myalgic encephalomyelitis, ME for short, is often titled with the trivializing...

see also this thread: https://www.s4me.info/index.php?posts/16619/

This link still works and takes you straight to the discussion. https://panopto.lshtm.ac.uk/Panopto/Pages/Viewer.aspx?id=3f756fa1-4190-454f-83a5-71a1063508bd very interesting QandA. I didn't realise that the Biobank don't have samples from children. Another reason why Crawley is so keen on the...

:speechless:

From Bristol Uni website, pdf of their statements re CFS/ME Research: http://www.bristol.ac.uk/media-library/sites/red/documents/research-governance/University%20of%20Bristol%20statements%20about%20CFS_ME%20research.pdf

It is supposed to be a microscope (it's in the emojis) but I guess in some contexts a cannon would be OK such as blowing PACE to bits.

The use of vexatious FOI is in the ICO documentation: " You can refuse an entire request under the following circumstances: It would cost too much or take too much staff time to deal with the request. The request is vexatious. The request repeats a previous request from the same person."...

I have tried.

"Unlike most charities and many ME charities, AFME does not allow its paying members to become legal members of the charity and therefore have no input into the direction of the charity and voting rights. It only recognises its own trustees as members." http://me-pedia.org/wiki/Action_for_ME

not my comment; I just copied and pasted a bit from their report.........as their finances were being discussed earlier in this thread. The biscuit was not intended to mean anything.