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Zactly or indeed anyone who’s seen a film like Steve Brine, or someone who knows someone’s cousin who has ME.......

Yuk I found it made me so sluggish and it wasn’t that effective after a while and I’m a middle aged chunky woman. I know drugs affect different people in different ways but I find it concerning they can’t come up with something better. Nortryptiline had less of a hangover for me so may be...

Right but some the things we’ve asked for aren’t necessarily going to need more money as they involve doing things differently. Different content for GP training, stopping GET will save money, supposedly money is already available for “the right research projects”. ETA or at least stopping...

He spent a good chunk of his time for responding to the points raised in the June debate going on about how he had seen Unrest giving his take on the film and the effect it had had on him - it felt like MEsplaining to me. Clearly the film had not enough of an impact for him as public health...

I know you put etc @Luther Blissett but fat people really should be on your list ETA speaking as a fat person

This

It’s a process of ramping up pressure to force it to a point where change happens. Most of the discussions happen behind the scenes but having debates is a way of showing the weight of interest and backing. The round table with RCGPs might actually achieve something if the right people are...

Yes have made this point on local Facebook group to try to promote advocacy

I know I wonder if this is John Siddles work or if MEAssociation were just asked to comment. If they have placed the story I would have thought they would have done better to find someone more aware of the advocacy issues. Seems more like an AFME type story.

This round table with RCGPs should include at least one of Dr Nacul Dr Speight and Dr Nina Muirhead

Sounds like too many of them are listening to AFME rather than MEAction.

It would be good if GET/CBT could be suspended in Scotland. - just seen the other thread this unlikely and the discussions in Scotland were disappointing

Yes there are some hostages to fortune in his speech good point

It was the SNP health lead presumably briefed by CM

Clearly Brine realised he was batting on a sticky wicket as he couldn’t repeat his waffling film review trick this time. Urgent call this week to RCGP to give him a fig leaf.

Definitely another debate out of this he just hasn’t dealt with the motion

Round table with RCGPs and a big pile of blah from Brine again

Will ask NICE about a statement but needs to be independent....... blah blah MRC party line blah blah

Offered a Round table meeting with RCGPs......

RCGP stuff is just repeating the same points he made in June