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So basically vague made up clinical categories they’ve defined with overlapping symptoms and therefore diagnostic critera have vaguely overlapping genetics? Who would have thought! It’s the exact same genuis brain it takes to use diagnostic criteria for ME and Depression that overlap in...

I was thinking what sports team you support and if your bellybutton stick out or in.

I’ve mostly the opposite experience. They immediately try and ship me off to therapist or rehab.

I love that there is a such a thing as a favourite molecule. To a layman like me it sounds kind of ridiculous but I guess it makes a lot of sense. Anyways, the idea of everyone having a favourite molecule makes me giggle :) (if this message reads like insomniac gibberish, that’s because it is…)

Same. Saw the name “chronic fatigue syndrome” a coupe times. Was like — nope, that’s not my problem. My proboem is whenever I exercise I get a migraine, feel sick, and my stomach hurts for the next couple days. This is actually how I mostly experience PEM. More this than the sort of small...

To be fair — the BPS do that also out of personal interest. Protecting careers and pet theories — getting funding from insurance companies and welfare averse governments.

You could say the same for ME/CFS though. the difference is one is a clinical grouping whcih we acknowledge we dont know if it has validity and with no assumed mechanism while FND by definition assumes a mechanism and validity.

I think David Tuller's written about that. AFAI Remember they created a clinical construct saying it happens because software problems in the brain, claiming they could differentiate it with positive signs (which are pretty subjective and rely on opaque things like "neurological expertise")...

And if there wasn’t massive social and institutional and infrastructural inertia behind the car being used for transport, it would probably be far more regulated than now. Kind of like alcohol (alcohol is more dangerous than something like cannabis in practically every way). Both alcohol and...

But wouldn’t Dara be a “for life” type treatment?

So if Dara were a very effective treatment for a subset of pwME and they could live relatively normal lives. They would still be limited by the fact they would have a suppressed immune system and therefore need to be very careful via masking etc. avoiding crowds, disinfecting even small cuts...

https://www.aquietstorm.me/ Was quiet impressed by this! Especially enjoyed Greta Granö’s collages of rest (and their accompanying poems).

Would be cool if they had an online version of the exhibition. Given those who are most disabled and likely would most relate with the art are the least likely to be able to attend.

I get that feeling. If I’m not getting the epub/pdf file, I’m not buying it. I don’t want to pay for access that can be revoked on the whims of the company/only be accessible through an ecosystem which limits customisation and accessibility etc.

If we are thinking of expanding the forum library, I think this would be one of the most useful pages to have

probably not best quality like most boox products. i had to exchange it cuz the first screen had a defect. but atleast via the swiss retailer Digitec/Galaxus they replaced it easy no hassle or arguing or trying to blame me for the defect and ive had 0 problems with the replacement

Worth filling in. Rather quick and possibly quite important.

I have a phone with an ereader screen that dims really well. It's what i use to access this forum lately since my normal phone is too much. it works great for reading although i can't read more than a page without couple min break in between because my concentration and short term memory is too...

Here’s the Schmidt Initiative for Long COVID, who are funding/running this. ( a very wealthy family.) https://www.s4me.info/threads/usa-schmidt-initiative-for-long-covid.40906/

Thank you. is this cycle what was discovered in the paper? or a theory to do with me/cfs? or both?