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Jonas Bergquist was in studio yesterday on Swedish television talking about ME research. Not able to give a recap in English now, but perhaps others can?

:( A journal for physiotherapists has picked up this story and writes that the HRA-report concludes PACE was a thorough trial. The final decision from Cochrane on whether or not to retract the Larun review on graded exercise therapy as ME treatment is due now in May. It's bad in itself to give...

There was a MillionsMissing event today in Stavanger, Norway. It was quite well attended with 100 people present and 2,3 K (and counting) viewers via streaming. The compère for the day was Eirin Sund, leader of the local union. Program: Patient talk from Emma, 10 years, read by Ella, 11 years...

ah, that was badly translated. It says: "Helland, on the other hand, points out that several patients in both groups actually experienced an improvement"

I got an email back which said my question got forwarded to the foundation's scientific research committee which reported that it's concerning a pilot study which will be published in connection to an ongoing larger clinical trial.

The Norwegian news site about research, Forskning.no, has written an article about RituxME. They have interviewed Øystein Fluge and team member Karl Johan Tronstad. They have also interviewed the leader of the national competence center for CFS/ME (known for their biopsychosocial approach to...

A brilliant letter to the editor in a local Norwegian newspaper. It's written by a nurse and ME-patient. Tønsberg blad: ME. Vi må faktisk snakke mer om det google translation: ME. We actually must talk more about it. Patients are distrusted, children have missed schooling and social...

The article is used as a reference in a debate in Norway about patients with gender dysphoria. It's used as an excuse to not listen to another patient group either. The healthcare system has long been terrorized by ME / CFS proponents to conceal that there is effective treatment for the...

Article about Gemma who is part of the Real ME, aiming "to bring an end to people suffering in silence this ME Awareness Week". CambridgeshireLive: Cambridge woman reveals the truth about living with a debilitating illness "ME remains a hidden disease. There is no known cure and no effective...

Article in InStyle which was unknown to me, but they have over 4 million followers on Facebook, so are reaching many readers. A personal story from an ME patient about the importance of the validation that comes with a diagnosis and the prospect of a biomarker.

New blog post: Trial By Error: My Exchange with the British Journal of Medical Practice As I have reported, I recently sent a letter to the editor of the British Journal of General Practice. To my surprise, when I woke up this morning I had an e-mail from him. Below is that e-mail, followed by...

7 Things People With ME (Chronic Fatigue Syndrome) Want You To Know Chronic fatigue syndrome, or myalgic encephalomyelitis (known as ME) is a long-term illness that affects more than 250,000 people in the UK, according to the ME Association. Despite the high numbers of sufferers – who are...

I'm a 40-year-old stay-at-home kid - and it isn't so bad - Diane Shipley At the start of the second semester of my sophomore year of college, I threw some clothes, books, and a packet of chocolate-chip cookies in a backpack, locked my room on campus, and took the train home, where I moved in...

I don't think these articles have been shared yet in the thread, so here goes: Discover Magazine: Scientists Are Closer to Developing a Chronic Fatigue Syndrome Blood Test STAT News: An experimental test may help confirm cases of chronic fatigue syndrome

Only the abstract is available for time being. Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome (CFS): Secondary Analysis of Data from a CFS Case-Control Study Conclusions. We found that more than a third of women with CFS reported endometriosis as a comorbid condition. The...

I't doesn't surprise me if patients improve during a stay there, but it does surprise me that dr. Harari towards the end in this video claims 66% get back to work, and that they have studies showing that. Does he mean 66% of ME-patients? I'd like to see that study and how they followed up the...

Interesting. Thanks for posting. They provide the same treatment for ME patients. I went to a seminar about ME organised by them where they claimed to achieve very good results. Left the seminar unconvinced. The experience from ME patients I've talked to who have been there has been divided. I...

Thank you. I didn't know that.

I'm finding the following sentence from the Discussion a bit odd: The cause of ME/CFS is unclear, although it is likely to be a heterogeneous disorder that covers different causes, pathologic processes, and is often accompanied by neuropsychiatric features.