Search results

program is available starts at around 01.09.00 https://www.bbc.co.uk/programmes/b0b25dbl The guy being interviewed is Edward Bullmore, Psychiatrist. He's written a book called 'The Inflamed Mind' review: https://us.macmillan.com/books/9781250318145 Have just looked him up on Wikipedia where...

indeed......... BTW, the Bristol ME Support Group are on FB https://www.facebook.com/bmesg

Coming up today (not sure at what time exactly) discussion on depression not being a 'mental illness' but is caused by inflammation. https://www.bbc.co.uk/programmes/b006wr3p eta: after 1.00

eta: for anyone on twitter the petition to remove CBT/GET from NICE guidelines is still ongoing https://www.change.org/p/nice-stop-harming-me-cfs-patients-take-cbt-get-out-of-me-cfs-guidelines-now

recent press release from TYMEs trust: 9 May at 12:42

10 minutes on Google (or better still me-pedia) would have sufficed; I was sending the BBC (named recipients) the same info as other media channels until my emails started being rejected. But in a strange way it is good to see the public confirmation that Simon Wessely is still very much behind...

No surprises there then. Wonder if someone could put together a counter reply to send to the BBC? @Jonathan Edwards @dave30th

great show; one question: Charles mentioned that the MEA are funding Julia Newton (Newcastle) research (not sure which project). Is the the same research as AfME are funding (Julia Newton is their medical adviser) ...

other responses:

Now, I am wondering if this was part of a 'Camilla' style PR thing, to make AfME more 'acceptable to the masses'(?) eta: see this thread https://www.s4me.info/threads/iame-international-alliance-for-me-anyone-know-about-them.4108/

Found a statement from WAMES: International Alliance for ME writes letter to the WHO WAMES has co-signed a letter from the International Alliance for ME to the Director General of the World Health Organisation, Dr Tedros Adhanom Ghebreyesus The aim is to persuade the WHO and its Member...

good name for #MillionsMissing:D

well that's a new name! Liverpool Echo article "A young hairdresser who “loved life” said he lost everything after ME robbed him of his ability to do his job and left him housebound. Brendan Boyd developed the condition, characterised by relentless exhaustion, in 2011 after he caught a virus...

May 13 2018 "Christchurch resident Melissa Bailey shares how she copes with the debilitating disease M.E." "I've learned a lot about the human heart and how terribly judgmental people are. Many years ago I was one of those judgmental people who on a school camp, came across a parent lying on...

Star and Crescent, Portsmouth: "Star and Crescent are proud to be working with Portsmouth fundraising campaign M.E. Foggy Dog and its founder Sally Callow on a week of articles devoted to raising awareness of Myalgic Encephalomyelitis (M.E.). In the final part of this week’s 6-part series on...

another ITV report from Manchester: "Hundreds of empty shoes laid out in Manchester to remember sufferers of ME Hundreds of 'empty shoes' have been laid out in Manchester to remember people who suffer from ME. The shoes symbolise the footwear of people diagnosed with the condition who are so...

ITV report (about #MM in Wales): "Campaigners call for more treatment for those living with ME Campaigners are calling for more treatment and research for those living with ME. Many sufferers are under the age of 40, bed bound, weak, suffer with extreme tiredness, constant pain and are over...

Bustle: "You may have noticed the hashtag #MillionsMissing trending on social media, or may have seen some landmarks lighting up blue over the past few days. That's because May 12 is International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day, and the folks posting in...

In light of recent revelations about the new alliance being formed, I was just thinking where would we be if everyone had just gone along with what we were being told (or not told). There would have been no questioning about the PACE trial, Esther Crawley would be heading up the MEGA project...