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Here is another reply in the ongoing debate at The Journal of the Norwegian Psychological Association. It is written by a psychologist and ME-patient and gives a good description of why this is a difficult debate. She starts with the prejudice she had towards ME-patients, until she developed ME...

- So I plan to conduct another crowdfunding campaign to support the project for another year—from July 1st, 2018, to June 30th, 2019. :woot::party::balloons:

Another reply to prof. Gundersen. For various reasons it wasn't published in the newspaper Morgenbladet, so was posted on a blog instead. Professor Gundersen forsvarer dårlig forskning google translation: Professor Gundersen defends poor research

Yes, that's so weird. Did anyone send him a mail about the PACE-debate at the Parliament where MP Monaghan says PACE will likely be one of the biggest medical scandals of the 21st century? Or has everyone completely given him up by now regarding PACE?

Wired: Bad results from drug trials no longer have a place to hide In 2007, US Food and Drugs Administration (FDA) Amendments Act was passed. The law laid out many different ways to try and improve the way new drugs are developed, including a publicly-available database of all clinical trials...

The Dutch organisation ME/CVS Vereniging has translated into English a recount from an ME-patient about a stay in a Dutch rehabilitation centre 15 years ago. The patient is still struggling with consequences of that horrible stay.

New answer to Gundersen from The Norwegian ME Association. ME-syke fortjener å bli lyttet til og respektert google translation: ME-patients deserved to be listened to and respected It is the treatment of ME patients in many places in the world that is a "horror example", not ME patients...

A news site about research has written about The Research Council of Norway's project and its evaluation. It gives a good summary of the process. Forskning.no: Pasienter og pårørende får bestemme ME-forskning google translate: Patients and carers gets to decide within ME-research "We have...

A coalition of parents and other carers to children and adolescents with ME has written a letter to the Norwegian Directorate of Health about the national centre of excellence for CFS/ME. The centre has a biopsychosocial approach to ME, and the parents give several examples of how this view is...

This is available now. Has anyone had a look? I can't read long texts, unfortunately, otherwise I'd dive right into it.

Turns out there were more articles about Marie Louise in that newspaper. Datter, søster og danser blev væk i mørket google translate: Daughter, sister and dancer disappeared in the dark She never really started the psychology study before she got so ill that we got her admitted to the...

Today's #OMFScienceWednesday post: OMF-funded research: T-cells and molecular immunology For the next few weeks, we will be describing the research projects that OMF is funding all over the world. The first project is about T cells and molecular immunology of ME/CFS, at the ME/CFS...

Article from Denmark where parents to a daughter with severe ME tell how difficult it is to get help. The local mayor has agreed to meet the family to hear their story. Ugeavisen: Historien om Marie Louise: En familie under pres Google translation: The story of Marie Louise: A family under...

... and an editorial in a local Swedish newspaper Upsala Nya Tidning - Risken med att omfamna ME google translation - The risk of embracing ME - And, of course, research is needed. But maybe even more about how hard it is to be human today. It is a paradox that the easier life becomes, with...

If anyone wants to give The Research Council a thumbs up for listening to patients and choosing ME as subject for this pilot project, you can do so here on Facebook. I believe they've really appreciated feedback on this project from the public, perhaps particularly from abroad. Please leave a...

Congrats! Well deserved!

Thank you for this elaboration, @mango My first impression from the couple of articles I've read about this doctor have been positive. There were a few things in today's article I reacted to, but there were also some rather good information in there as well. I am longing for more hero doctors...

Can you tell me a bit more why you are not recommending it? Is this a controversial doctor in Sweden? No rush in answering and if you are not up to it, it's no problem.

I don't know the original source of this (spotted it in a tweet by Tom Kindlon) :laugh:

I quite like these small, informative Science Wednesday posts from Open Medicine Foundation and thought it might be nice to have a thread with a collection of them. Starting from last week's post. If you want to read the previous posts they are gathered here at OMF's website. What do T cells...