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Thanks. I did realise and was going to do what I used to do when more active on the forums - back in the PR days - and produce a blow-by-blow transcript. Just didn't have time.

I am hoping there will be some additional positive news from the MRC and NIHR regarding biomedical research funding for ME/CFS in the New Year following CMRC efforts. I can't say more for now, but you may well have been following the 'Bioresource' developments in the CMRC summary minutes that...

Looks like I erred when commenting above. We actually have well over 300 images now. This year has been so busy, I really haven't had time to properly do them justice although I have tried. I do think that everyone who has sent us their photos is incredibly brave and we're very grateful. We...

Phew! Managed to publish ahead of the Christmas break. He did catch us by surprise with the Acumen-test research results and by publicly announcing the MRC application. But it made for an even more interesting presentation I think...

Hi We have over 250 photos kindly forwarded by people with M.E. for the Real M.E. Campaign, accompanied by personal stories and some video. We were able to use many of the images on our website and social media, and during MEAW in particular. Also, the photo's led to permissions for stories to...

I finally cleared some time to watch the video and I also have the slides that Dr Morten used. The MEA helped fund the talk so we'll be publishing both and summarising highlights - did you guys pick up on the Acumen/Myhill/Booth research outcomes? - probably tomorrow now. I had hoped to do it...

Hi, Rather interesting comment left on the ME Association's Facebook page that I certainly hadn't considered before. Someone said they had a M.E. diagnosis, then years later incurred a Hep C infection and were treated with IFN-Alpha, and still have M.E. symptoms and a diagnosis. The comment...

Just to be clear. The words are taken from King's College's website. I added links to all the main headlines and BBC Today Programme. Quotes from Dr Shepherd carried in The Telegraph. And the tweet from Simon McGrath. On our social media I have carried all the reports individually. This was an...

The current NICE guideline does attempt to define the terms used. You can find the definitions in Appendix D attached to the main document:

Here's the promised updates on sentencing and some more detail: https://www.bbc.co.uk/news/world-europe-guernsey-46359949

BBC One Show last night carried a feature on the prosection of David Noakes and his co-accused (which included his ex-wife apparently). We put together a blog that I updated yesterday evening. According to the BBC he received 15 months jail-time but I expect we'll hear more in the news later...

I must admit I am confused about where it is exactly published and what kind of publication it is. But aside from that it is rather pleasing I must say to see the team publish. Not that I understand how important this might be, or whether it is unique to ME/CFS. But I understand much larger...

An update from Dr Shepherd on the MEA Facebook page this afternoon:

You'd think that performance reviews and CPD accreditation and other training she received might have indicated she wasn't qualified. But then as she wasn't for example performing surgery - where I assume the chance of mistakes being noticed is higher - perhaps with things like psychology and...

It's all about 'foreign' doctors on the BBC though isn't it? And the GMC are as bad. Looks to me like this was only discovered because of her later actions and the GMC are only reviewing current 'foreign' doctor registrations because of media campaigns:

Hi I don't have the answers I am afraid and am as confused by the workings of the committee as I suspect others are. Dr Shepherd had he accepted the offer to become a full member would have been gagged from speaking about any of the issues included in the NICE guideline, and this would have...

As the cat is out of the bag, so to speak, and despite the lack of promised communication from NICE, we decided to post the statement today: https://www.meassociation.org.uk/2018/11/me-association-statement-re-nice-me-cfs-guideline-review-and-committee-appointments-09-november-2018/ Dr...

Well, I am sorry about that. Looks like NICE hasn't been in touch today. Dr Shepherd is away on business but from what I can tell, no other stakeholders received an email today. Until we hear from NICE we can't issue our statement. So, we'll have to hold fire and hope something appears tomorrow.

I see Greg Crowhurst has announced on Twitter his appointment as expert witness for severe/very severe people with M.E. Another good call I think.

I think NICE are pretty clear that primary care (i.e. GPs) should be capable of diagnosing ME/CFS and that referral is really for help in learning to manage the condition [insert preferred alternate terminology] etc. and for a second opinion. However, NICE also recommend specific referral...