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Severity: 2.1 or 2.0 on FUNCAP. Most of day resting with feet up, can only leave house occasionally with a helper. Mostly managing to stick to a strict pacing routine (am lucky to have various kinds of help with this) and not getting PEM very often. Much more likely to have a PEM episode from...

I find the 'ignore' function really useful, to mute the parts of the forum that discuss psychosomatic stuff and certain practitioners of it. So I can go and look at those threads if I feel I want to know something, but they're not always in my eyeline and popping up on the 'Recent Posts' lists etc.

My first thought was that it's a shame the petition title is so bland; it might have got a lot more signatures if it was something punchy like 'Stop classifying ME/CFS as a psychiatric condition'. But then again, I can't imagine it would have got a different response from Elsevier if it had...

Dropout and spontaneous recovery rates are relevant, but the much bigger problem with this "audit" is that self-reports of improvement due to LP can't be taken at face value, because LP teaches participants to misreport. Self-reports would have to be checked against objective outcomes, and this...

"We told sick people that if they ever want to recover, it's crucial that they say they've already recovered. Then we asked them if they'd recovered and they said they had. Checkmate, critics!"

and paid sick leave. (Speaking of "Population-based initiatives [that] may alleviate the PCCD-related public health burden.")

... so basically they've found that Long Covid is somewhat more likely to affect people of lower socieconomic status.

I was interested until I read that! The images suggest a much more continuous monitoring, so are there different versions of the device? (I may well have misunderstood)

A report on the state of NHS admin and how it affects care. https://www.kingsfund.org.uk/insight-and-analysis/long-reads/lost-in-system-need-for-better-admin

None of these old RCP crew can ever resist the whiff of a jackboot.

I hope they hurry up and replace this ministerial post with an AI chatbot. It will generate equally clueless nonsense but we won't have to pay its salary and expenses.

Thanks! It would be so interesting to know what happens to blood flow and oxygenation during activity - I guess we're quite a way off having the tech to see that.

OEF is measured with the participants resting, am I right?

Some pretty obvious confounders there.

impressively meaningless phrase

I hope he'll acknowledge that there are many people with other stories for their recoveries - I got better because I took these expensive supplements! because I got acupuncture and reiki and crystal healing! because I realised I'd never really been ill at all! because the people at my church...

On the other hand, there are people who don't get vaccinated because they don't believe Covid is dangerous (for people like themselves), so if they go on to have LC-type symptoms they'll be less likely to attribute them to Covid.

When they say there were improvements in the treatment group but choose not to mention whether the control group also improved, do we take that to mean the control group also improved?

Karl Morten's group's discussion paper on the Wüst paper went into brain aspects.

Can someone refresh my blurry memory on something in this study? The much-hyped "effort preference" finding is based on differences in activation of the temporo-parietal junction in the (small numbers of) pwME and healthy controls in the button-pressing reward test. Did they also look at TPJ...