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That's well put. It's a shame when writers with good intentions spoil their work by starting from a narrative concept and making patients' stories fit into it (which always means ignoring any facts that inconveniently stick out).

I think it's an important distinction because "gaslighting" is a dead-end accusation. "Doctors should stop gaslighting patients!" - doctors reply: "We aren't doing that, we're trying to help." Whereas "Doctors need to keep their professional knowledge up to date so that they don't inadvertently...

I want someone to be looking at these possible central and peripheral signalling abnormalities in LC - do they replicate, are they also observable in ME/CFS...

The problem with the phrase 'medical gaslighting' is that 'gaslighting' has a specific meaning: the gaslighter is trying to persuade the other person to believe something they themselves know to be untrue. In the film, the perpetrator was trying to make the victim believe she was going mad so...

No. It's a very superficial copy-and-paste exercise, presumably a student assignment?

Relevant forum threads: https://www.s4me.info/threads/immunological-dysfunction-persists-for-8-months-following-initial-mild-moderate-sars-cov-2-infection-2021-phetsouphanh-et-al.20889/...

is there any legitimate reason to assume the direction of causality here?

But if the brain activity necessary for the task isn't happening, or is impeded from happening, then choice doesn't enter into it (rational or otherwise). it's just not happening.

Yes, and: Funny how these apathetic and uninterested people managed to sign up for and participate in the study, completely voluntarily... Also the speculation about 'response to trauma' here is weird.

Nice.

I'm wondering the same thing, having got new fancy bathroom scales which tell me my muscle mass is similarly on the cusp of normal and athlete-standard - this after four years of being housebound and extremely sedentary.

They started with a cohort of 'approximately 1000' and ended up with 76 participants,

Little or no change in quality of life measures across the 6 months (see graphs) suggests the improvement in fatigue scores is an artifact of the Chalder fatigue questionnaires.

It would be potentially interesting to compare waist-to-height ratios before and after infection, in a physically active population like this one - less likely to be putting on extra belly fat from being sedentary, so it might line up with results being found elsewhere regarding changes in fat...

Just to give another example, I googled 'Long Covid neuropathy' last night and one of the top results was the NHSInform page on Long Covid: https://www.nhsinform.scot/long-term-effects-of-covid-19-long-covid/ [edit to add, sorry, it's the POTS link given on that page, not the LC page itself]...

Slow phosphocreatine recovery was mentioned in the WASF3 study https://www.s4me.info/threads/wasf3-disrupts-mitochondrial-respiration-and-may-mediate-exercise-intolerance-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-hwang-et-al.34776/page-13#post-583206 Wonder if anyone's looking...

Has it now.

https://www.bbc.co.uk/sounds/play/w3ct8txt Starts at 06.55. It starts rather badly with historical quotes about "lethargy" and "gloom" but improves once Danny Altmann starts talking about the different things they'll be looking at (gut microbiome, autoimmunity...) He says ME and LC research has...

It's worth emailing the readers' editor about a blunder like that.