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Oh no. Raelan Agle, Pamela Rose etc are all these ME/CFS coaches who have even recommended the Lightning Process or NLP. I actually have a lot of issues with them and their YouTube videos in my own ME/CFS group because people keep sharing their material. They think all those recovered patients...

Additional info: this is not just an Australian thing but an update to the original guideline endorsed by the organization World Physiotherapy. Originally, PEM wasn't mentioned, so this is a new addition. The guideline has been translated to many different languages...

As you can see, this is not a new article but I thought it was worth sharing. Written by a family physician. Not really about ME/CFS but this general attitude would be really beneficial for us too of course. “I don’t know.” It’s an answer patients hate to hear. It is also an answer we doctors...

I'm posting this after getting a Google Scholar alert because the entire paper was translated to Hungarian. This paper was mostly written by Australians involved in physiotherapy. PEM is mentioned: ME/CFS is not mentioned (I haven't read the whole paper though).

Abstract This document provides an update to the recommendations for physiotherapy management for adults with coronavirus disease 2019 (COVID-19) in the acute hospital setting. It includes: physiotherapy workforce planning and preparation; a screening tool for determining requirement for...

Some of you may remember that about a month ago I wrote a letter to a Hungarian Member of the European Parliament. @Michiel Tack drew my attention to him after he spoke supportively about ME/CFS patients when Evelien Van Den Brink gave a speech in front of the petitions committee of the EP...

Are there any sources about this available online? These are quite prominent symptoms for me and I'd love to read more, especially about the water balance issue that badly affects me but only seems to affect a very small number of patients otherwise (and thus I struggle to find decent info about...

There is this study here that is funded by the Hungarian National Academy of Sciences (google translate): If someone is interested they can check out some of the other long covid studies funded by the Academy in this post: News from the Visegrád Countries - Czech Republic, Poland, Slovakia and...

I can relate so much. This is exactly my problem too and I've been thinking about this even more lately, now that I'm actually worse than when I started writing the articles/letters. I'm literally full of ideas that I feel should be done and could be done quite easily without this disease but...

If anyone's interested, here is how the idea of the concert came up and Chris Martin got involved, according to Hal: Walker’s three close friends from college at Northwestern University came from out of state to visit him when they heard he was getting sick. “They stayed with me for weeks and...

Practical Pain Management: COVID Long Haulers and the New Chronic Pain Profile Most of the article is general info on long covid (and the possible connection with ME/CFS, fibromyalgia, POTS) but here is what some of the doctors said: Dr. Morlion weighed in on his perspective based on his...

Yes, I actually posted this because I'm not that impressed with the invitees of these new webinar series so far.

There are a lot of covid long haulers in my ME/CFS group who are new to this and are getting sucked into these therapies quite easily, including the spinal surgery one but also the apheresis one or all the YouTube coaches, or basically anything that they see popping up in the English-language...

This is the second installment in the diagnostics and treatments webinar series, the first of which was the one with the controversial Bruce Patterson. There is also another new webinar series "exploring the pandemic's long-term healthcare, policy, and economic impact". The first presentation...

My parents (who don't have ME/CFS) only had Pfizer. They felt nothing after the first two shots but were surprised to have quite strong (but typical) side effects after the booster. I don't know how common this is. As for me, I got Pfizer after two AZ shots and each time the side effects were...

Not much, but at least someone wrote about another ME/CFS and long covid related study and the good thing is that it appeared on a medical news site that is intended for doctors. (You are not even allowed to read 95% of their articles unless you prove you are a doctor but I guess the ones about...

Currently in my 6th year (very sudden onset, I basically never recovered after the EBV infection). First 1-2 years: started at my all time lowest, which was the lower end of moderate, then gradually (painfully slowly with relapses) improved. 3rd year: I made a huge improvement and became very...

More than 25 musicians from around the country will come together Friday, Jan. 7, 2022 to present "A Love Song for Hal," a live-streamed benefit concert that will raise money to support beloved Ohio musician, Hal Walker, in his battle with myalgic encephalomyelitis/chronic fatigue syndrome...

I just saw another article about her which talks a lot about her recovery and that she became a "fatigue coach". I looked her up and this is what I've found on her website: That’s why I set up Pamela Rose Coaching. As a fully qualified performance coach with NLP (Neuro-linguistic programming) I...

This has been published in the Lancet now, with the accompanying text somewhat changed in a few places. For example, in the original one ME/CFS was briefly mentioned, although not really in the context of being a similar medical condition: From a historical perspective, it took years to define...