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An article appeared on ME/CFS on Házipatika, the most visited health website in Hungary. This website is aimed at the general public. The article is a summary of description of the disease and it seems to be based on the CDC mostly (you can spot some of the problematic info you can find in CDC...

NIH must address the twin crises of long Covid and ME/CFS — together By W. Ian Lipkin and Elizabeth Ansell While the emergence of Covid-19 has fostered a massive opportunity to advance our understanding of post-viral illnesses like ME/CFS and long Covid, the RECOVER Initiative has been plagued...

Me too. The person in my group was convinced she had PEM even after she was finally diagnosed with MG. (She didn't seem to have an obvious, typical case of MG and she went undiagnosed for 4-5 years.) Though I remember Jonathan Edwards talked about this elsewhere on the forum and from what I...

The Medical Republic: Cochrane cancels chronic fatigue review five years in Cochrane has unexpectedly cancelled the planned update of its controversial 2015 exercise therapy for chronic fatigue syndrome review, and its independent advisory group of stakeholders are demanding answers. Full...

I just realized I have something similar to the internal tremors sometimes mentioned on the forum. When I have really bad days, my symptoms are the worst right after waking up and I have two symptoms that are only present at this morning time but they also disappear relatively quickly. One of...

To me what is surprising is not necessarily the fact that Nordic countries score high in the various "happiness" etc indexes but that they tend to be quite progressive and modern and forward-thinking. I find it really hard to understand how a country like Norway can be one of the worst offenders...

I posted an article about Pascal Arimont's parliamentary question to the new Commissioner in the EU thread. The question was submitted at the end of last year, so I'm not sure if this was asked independently of EMEC's efforts or is the same thing. Here is the link to the other post...

Just came across this article: Chronic fatigue syndrome, EU still knows too little and calls for research Two million people in the EU and UK alone would suffer, with negative spillover effects of €40 billion annually. Varhely: "Horizon calls revised to invest here. Targeted research can be...

I'm 99% sure SM means multiple sclerosis (MS) in @tuha 's post. The order of those two words is changed here too, so it is easy to mix it up in English.

I can relate! There is a review among the most recent threads with the title "Concussion and the Autonomic, Immune, & Endocrine Systems (...)", which somehow turned into "Confessions on the Dancefloor (...), 2025, Pertab et al." to me. :oops:

Retraction Watch: Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome Cochrane abruptly ceased communication and made little effort to explain why the pilot was abandoned, said Hilda Bastian, a meta-scientist, writer and cartoonist in...

I don't have a strong opinion about this, just would like to add something about ME/CFS Unravelled. (I know this wasn't one of the poll options but has been suggested in the comments.) CFS Unravelled is the title of Dan Neuffer's book and he also runs a website by this name. Neuffer is one of...

This study has reached us too, I have seen articles about it in two well-known news outlets here. This was also one of those extremely rare (or non-existent, rather) instances, when someone other than me used the word ME/CFS in an article, instead of just chronic fatigue syndrome. So I would...

Another thing is: if you remember, last year I asked the National Centre for Public Health to rewrite their page about ME/CFS on the governmental website Egészségvonal ("Healthline"), which is kind of like the NHS website with information for the general public. They rewrote it without any...

Btw, the guy I have to meet, János Réthelyi, the Head of the Department of Psychiatry, seems to be mostly interested in the biological background of psychiatric diseases, the genetic background of schizophrenia and ADHD and the genetic background and environmental risk factors in developing...

Dr Beáta Sebestyén, the Head of Department, Department of Quality Improvement (from the Ministry of Interior) just called me on the phone after I sent them a short email yesterday asking about the promised consensus recommendation. I asked how it is going and why they said "they found...

Radio Free Europe has created a video about long covid in Hungarian. It is about 10 minutes long and two members from my ME/CFS Facebook group share their story and experiences in it, Beáta Szabó and Edit Tarjányi (they are the only pwLC in it). The reporter also interviewed Ádám Dénes brain...

An article was published about this study, with one of the researchers speaking about it. The article is kind of self-congratulatory, also, they are developing a test. No mention of ME/CFS or PEM or similar. I asked ChatGPT to translate: A groundbreaking long-Covid study has been conducted at...

Oh yeah, I remember when I was a teen, violent movies and video games and Marilyn Manson personally were responsible for all the teen violence. Also, there was a book in our high school library titled "Satanism and Rock Music" about what terrible effects rock music has on youth. We were excited...

Full title: Transcutaneous electrical nerve stimulation for fibromyalgia-like syndrome in patients with Long-COVID: a pilot randomized clinical trial Alejandro Zulbaran-Rojas, Rasha O. Bara, Myeounggon Lee, Miguel Bargas-Ochoa, Tina Phan, Manuel Pacheco, Areli Flores Camargo, Syed Murtaza...