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I was very athletic before my ME/CFS onset. I did strenuous workouts regularly, HIIT and strength training mostly. These were really hard workouts, not for untrained or moderately trained people. Since this was a lifestyle for me, whenever I caught a cold, I kept doing my workouts like nothing...

There was someone in my FB group who lives in Switzerland and she mentioned how great it is that there are rehabilitation clinics for long covid there and she even said there were some special programmes for people that present with ME/CFS type symptoms (so people who have PEM, I guess?). She...

Katherine Huang, Alex G. C. de Sá, Natalie Thomas, Robert D. Phair, Paul R. Gooley, David B. Ascher & Christopher W. Armstrong Abstract Background Diagnosing complex illnesses like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is complicated due to the diverse symptomology and...

The final version of the detailed critique of this review is now published on mecfs.hu in Hungarian: Kritika a Long COVID – neurológiai vagy szomatizációs betegség? publikációhoz (Ideggyógyászati Szemle) You can also read the Google translated version here, although due to the language...

Interesting claims from Bettina Hohberger from the German Fatigatio Facebook page (FB translation)...

I'm wondering about how to address all this. I'm not sure there is a point in sending a letter to the paper, Janszky is a consulting editor there, whatever that means. (It is called Ideggyógyászati Szemle/Clinical Neuroscience and it is indexed by PubMed, Google Scholar etc.) I'm also not sure...

Something else I forgot to add: Janszky is the neurologist professor who gave a presentation at the LC symposium of the Hungarian Academy of Sciences and which basically was a "best of Michael Sharpe, etc". He talked about militant ME/CFS patients threatening researchers, how researchers were...

I have read it and it is pretty awful. A quick summary: The first half is not so bad, it is a review of all the biomedical theories about the etiology of long covid. However, there seems to be a clear BPS bias towards psychosomatic explanations in the second part. There is a very heavy...

Background and purpose – Post-COVID condition (also known as long COVID) is a syndrome characterized by persistent symptoms following a suspected or confirmed SARS-CoV-2 infection, lasting for at least two months and are not attributable to other conditions. The most common symptoms include...

Full title: High prevalence of long COVID in anti-TPO positive euthyroid individuals with strongly elevated SARS-CoV-2-specific T cell responses and moderately raised anti-spike IgG levels 23 months post-infection Zsolt Matula1 Viktória Király2 Gabriella Bekő2 Márton Gönczi2 András Zóka2 Róbert...

I don't have the energy to say more right now but I've been reading your posts and I think you are doing great with all this exploring and trying to navigate things (while not having the same background or experiences as other people due to such an early onset of the disease). I know you have a...

I don't have access to the full article but this cannot be anything good. The Telegraph: It’s the illness that has no cure. But this doctor believes he’s found answer to chronic fatigue syndrome Chronic fatigue and long Covid remain poorly understood, but Dr Perrin’s unusual techniques are...

Full title: Barriers and facilitators of healthcare access for long COVID-19 patients in a universal healthcare system: qualitative evidence from Austria Peter Gamillscheg, Agata Łaszewska, Stefanie Kirchner, Kathryn Hoffmann, Judit Simon & Susanne Mayer Abstract Background Long COVID-19...

Another article about Ádám Dénes' long covid research, this one is from the website of the Hungarian Academy of Sciences as some sort of a teaser for the upcoming event of the Academy on long covid (you can find details of the event in my post above). The article is quite long though (and it was...

Forbes: Can A Medicine Used For Bipolar Disorder Help People With Long Covid? A clinical trial of 52 people with long Covid who were prescribed low doses of lithium aspartate revealed that it failed to treat symptoms like chronic fatigue and brain fog. Despite this finding, researchers say...

Just a quote from an article I saw earlier this year. The article was based on an interview with Professor Tamás Horváth, a Doctor of Veterinary Medicine whose main interest is neuroscience. He is Hungarian but he has been working at Yale since the fall of communism. This is what he said...

Those GPs may indeed be wrong then, because there is nothing unusual about not having a fever with a cold, for example. Here, some images from the CDC and the Cleveland Clinic, where the symptom fever is called rare or is absent for the common cold. From what I understand, in the case of some...

I have sound sensitivity, I don't have light sensitivity. The sound sensitivity is not one-sided in my case.

I gave up drinking alcohol due to my symptoms. I used to drink wine sometimes before I fell ill, sometimes cocktails, all socially. Now even one glass of wine would be a challenge because it makes me feel ill, with symptoms appearing rapidly (not after finishing the drink). It is not so easy to...

Sorry for the long reply in advance! Bolded the most relevant part of my answer. I do get a lot of swelling. This was actually one of my first symptoms and it started so rapidly (one evening my stomach area just started to quickly swell) that I ran to the emergency because it was so weird. I...