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  1. Wyva

    'You'll know you're getting better when you start getting colds & flu again' - anyone else come across this?

    I was the opposite. Before my ME/CFS, I was very rarely ill. Of course influenza affected me when I got it twice as it is normally much worse than having a cold. But whenever I got a cold, it was just a tiny blip on my radar, I kept living my life like nothing was happening, it affected me so...
  2. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Upcoming event organised by the Hungarian Academy of Sciences: Research on Post-COVID Phenomena, 26th November, 14:00-17:00 Researchers will talk about their post-covid research projects, which are funded by the Academy. Not all of these are medical, some of these examine the legal...
  3. Wyva

    Miranda Hart - British comedian

    CS has posted the Clare Wilson article on the MEA FB page, without any further comment. I saw it early in the morning, so just skimmed through the comments from the community but a lot of them agreed with the article and were supportive of Miranda Hart and her book. (Eg I agree, it is Miranda's...
  4. Wyva

    Miranda Hart - British comedian

    She probably is. This is what you can read about her at the end of the iNews article: "Clare Wilson is science writer at the i paper. She was previously a reporter for New Scientist, specialising in medicine and life sciences"
  5. Wyva

    Miranda Hart - British comedian

    Accusations of ‘pseudoscience’ against Miranda Hart are deeply unfair by Clare Wilson The accusations levelled at the TV star are unfair - there's evidence for the techniques she used to alleviate her ME Miranda Hart is getting attacked for writing a book about how she recovered from chronic...
  6. Wyva

    The Medical Independent: Challenging the ME narrative

    Opinion piece by George Winter The time has come to confront the damage caused by flawed science and give ME the recognition it deserves Writing in The Guardian in July, Dr Alastair Miller – who has “… been involved in the diagnosis and management of this condition since the mid-1980s…” –...
  7. Wyva

    Higher level of physical activity reduces mental and neurological symptoms during and 2 years after COVID-19 infection in young women, 2024, Takács et

    From the website of Semmelweis University (translated by Google Translate): Dr. Ákos Koller received one of the most prestigious awards of the American Physiological Society He is one of the authors of the above study. He didn't receive the award for his work on long covid specifically but the...
  8. Wyva

    Chronic Overlapping Pain Conditions in people with [ME/CFS]: a sample from the Multi-site Clinical Assessment of ME/CFS (MCAM) study, 2024, Fall et al

    This may be due to geoblocking. Is this an American website? Are you in Europe @Dolphin ? Some American websites decided to block every visitor from the EU, due to the EU's strict GDPR laws. They find it easier to block this area than to make their website GDPR compliant for people from the EU...
  9. Wyva

    Maeve Boothby O'Neill - articles about her life, death and inquest

    New article in the Guardian by George Monbiot mentioning Maeve - in this thread: https://www.s4me.info/threads/george-monbiot-on-me-cfs-pace-bps-and-long-covid.20126/page-18#post-559985
  10. Wyva

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    George Monbiot in the Guardian: Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? How could this happen in the 21st century? This question could apply to many issues, but this one sends you reeling. A brilliant and lively young woman with a common...
  11. Wyva

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    Medscape: Does Mast Cell Activation Syndrome Underlie Multiple Ills? https://www.medscape.com/viewarticle/does-mast-cell-activation-syndrome-underlie-multiple-ills-2024a1000isk?form=fpf Depending on one's perspective, "mast cell activation syndrome (MCAS)" is either a relatively rare...
  12. Wyva

    Lack of fever during acute infections

    I agree with some other comments above that this largely depends on what kind of infection you have. I'm not sure it is a good idea to try to quantify this in percentages. Most often people will get the common cold probably (at least up to the past few years), which doesn't induce fever so much...
  13. Wyva

    Miranda Hart - British comedian

    The truth behind Miranda Hart's controversial chronic fatigue cure claims - as the star is accused of peddling pseudoscience https://www.dailymail.co.uk/health/article-13965513/Miranda-Hart-controversial-Lyme-disease-pseudoscience.html Vikings star, actor Jennie Jacques, who developed ME in...
  14. Wyva

    A narrative review on the similarities and dissimilarities between [ME/CFS] and sickness behavior, 2013, Morris et al

    I have no idea if it is common or not. I had no fever at all during glandular fever (which was my trigger), even though I had a whole range of other symptoms, including some less common ones, like the swollen eyelids that even obscured my vision one morning. My lymph nodes were so swollen that...
  15. Wyva

    Immunometabolic changes and potential biomarkers in CFS peripheral immune cells revealed by single-cell RNA sequencing, 2024, Sun et al

    Abstract The pathogenesis of Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) remains unclear, though increasing evidence suggests inflammatory processes play key roles. In this study, single-cell RNA sequencing (scRNA-seq) of peripheral blood mononuclear cells (PBMCs) was used to...
  16. Wyva

    Encyclopedia Britannica website: entry on CFS

    The article has been updated. There is still bad info on exercise therapy etc. They have changed the name to ME/CFS though.
  17. Wyva

    Was there a gap between trigger and onset of your ME/CFS?

    Mine started with EBV, I had no health issues before. I was ill with mono for 3 weeks. I still tried to live a normal life during the first week (even tried to work out) but it just got worse and worse, so eventually I had to stay in until I "recovered" because I was too ill. After three weeks...
  18. Wyva

    News from Southeastern Europe

    I have posted a Hungarian article about ME/CFS in the Visegrád thread (the article is translated to English in my post). There is an ethnic Hungarian doctor from Targu Mures/Marosvásárhely (Romania) talking about the disease in it, so I'm sharing the link to that thread here too, maybe someone...
  19. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    There was an article a couple of days ago in Nők Lapja, a well-known women's magazine about ME/CFS. It is a mixed bag, starts pretty badly but then it talks about PEM, pacing, orthostatic intolerance, things that are basically never mentioned on the Hungarian internet (neither by the media, nor...
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