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Given the right adjustments, people with ME/CFS, in all its categories of severity, possess capabilities that could be revived to a reasonable and necessary level of function for an elevated experience of life. As the social model of disability would argue, people with ME/CFS are not disabled...

Very good letter, @InitialConditions. Thank you. :thumbup:

Indeed. The correct response to the oil pressure warning light coming on and the temperature gauge starting to rise is not to press the accelerator harder. I hope this paper is an anomaly. A (maybe even the) critical piece of evidence for lack of deconditioning (at least substantial enough to...

Which version? :devilish:

Thresholds are a less problematic concept for me, as long as it is understood that they are dynamic and to some extent chaotic; not easy to spot, not a simple marker to avoid, more like a fuzzy space with a lot of inherent unpredictability; and not crossing a threshold doesn't mean you are...

I increasingly get the feeling that in general there are now sufficient clues sitting there in front of us, but we don't have the right conceptual framework yet to make the connections and draw a good research map.

Has he ever considered gathering sufficient robust evidence?

What most strikes me about the BPS movement is its lack of humility. They are utterly certain they are correct, and are instead entirely focused on how to market it to the lay public, the profession, and the political class.

Convalescence is a concept and term that could be useful for us. Good chance, I think, that a lot more patients would do considerably better in the long term, even if not actually fully recovering, if they were both diagnosed early, and allowed to convalesce adequately in the early stages.

It is staring the medical profession and governments right in the face, and yet... *crickets*

:grumpy:

It's pathetic, isn't it. They will not commit to the one thing that will help both us and their short-sighted budgetary obsessions, which is a solid basic research program. How many decades have been lost now because of this and the blocking of non-psych research by the psychs?

What angle is it (approx.)?

Damning with faint praise, indeed.

For a start, the unremarkable fact of the additional burdens of normal ageing on top of serious chronic and very badly managed disease need to be factored in. If you are already barely functional it does not take much extra burden to crash the whole show. Indeed. The lack of decent...

I remain deeply and increasingly skeptical of the whole CBT show.

Maybe. But not an assumption that can be safely made, IMO.

Wow. That is seriously bad even by psych's usual low standards.

As disappointing as any negative result is for a previously promising preliminary finding, nonetheless it is far better to know it is not holding up so efforts and funding can be better allocated to other possibilities. Onward ho!

Yep. Why is he so special and important that he gets such endless uncritical deference and protection? How such a person has been allowed to become so powerful and beyond accountability, indeed lavishly rewarded for his failure and misbehaviour, speaks disturbing volumes about the broader...