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There's no evidence the 'reanalysis' is a full reanalysis, or that it has been prompted by critical comments on the draft. It may well be due to comments from patient groups or charities. I really don't know who was prompted this; it's not clear from the FOI request because those details (the...

I decided to publish this blog post today, rather than add further details that probably aren't needed at this stage. This has been sort of rushed, so I'm open to any comments on the post and if it can be improved. The blog is here: https://domsalisbury.github.io/mecfs/nice-mecfs-guideline-delay/

Yes, I didn't really understand Sonya's post. Maybe she sees it as a little 'campaign'. I mean they gave justification for the delay. I had a feeling it wasn't the full story, and it turns out that's partly true. I will post on this tomorrow or Friday.

If anyone buys the print edition, please let me know if this letter appears. I have a feeling it might be online only.

Hilarious. I've not dressed like that for years! Mind you, they've nailed that weight-of-the-world look.

I'm pleased to say The Guardian has published my response, pretty much unedited. https://www.theguardian.com/society/2021/apr/29/long-covid-why-psychological-therapies-have-limited-benefits

Because they fill the gaps between the door and the frame. I use them on my front door which is an old wooden door and ill-fitting. They're only about 5 mm thick.

I suspect this is part of a routine work-up in the long-Covid clinics. When I see these patients clasping at their chests and struggling to breathe, I imagine there is probably cardiovascular and/or respiratory damage/impairment, rather than ME-related exertional intolerance. But maybe these...

Correct. I've pointed out on Twitter other ways in which Sharpe and co have subsequently tried to recast what PACE was and who it was for:

I think it's telling that Sharpe is focusing on the evidence review in this tweet, rather than the recommendations per se. I worry that this is their way in; the basis of any challenge to the recommendations playing out right now behind closed doors.

That's exactly my point. All of these 'behaviours' are also often the result of being ill with ME/CFS.

I probably don't have to spell this out, but there's a correlation / causation issue here that makes these findings pretty much redundant.

Someone needs to take the Swiss Re logo and turn it into a Sharpe & Co Reassurance meme.

There seems to be a lot of comments on the Guardian article about hypochondria and role awareness in the media might play in that. For me, this is something that likely exists on a small scale, but it's a misreading of the article. Rather, the article considers forces at the societal level, and...

This is a beautiful piece about becoming chronically ill, learning to cope under the extreme burden, and accepting a new reality. It was written over the course of a year by Matt Lazell-Fairman, who has ME, and whom I know through his wife Katie. Matt is also the son of Mary Dimmock, who now...

So they can say 'it's the most common illness you've never heard of'.

Does anyone have access to the paper? Please DM if so!

If you ask Suzanne and her peers about all the so-called psychosomatic illnesses through history that have eventually been shown to be disease rather than 'just illness', what is their response?

Did your ME/CFS involve a viral trigger?