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Thank you for the summary Trish, I haven’t been able to watch the video. Most of those points seem reasonable. One I disagree with is a carer not interrupting the consultation. I’m sure there are some carers who are unhelpful in a consultation in the same way some patients are, but there is...

In Australia there are 4 psychiatric hospitals that I know of, and there are probably more, using TMS (Transcranial Magnetic Stimulation) as a treatment option for treatment resistant depression. I wouldn’t call it a fringe treatment here. My daughter’s psychiatrist has several clients that find...

The “transcript” is not verbatim and doesn’t include the questions or comments from the hosts. In context it was clear what was meant. Heidi compared it to other illnesses like MS, lupus and RA where there is also a similar higher prevalence in women than men.

There is an accurate test for blood volume though it is not often used. It involves injecting a measured amount of a radioactive tracer, then withdrawing a measured amount of blood and calculating blood volume from the ratio of tracer found in the blood sample.

@DokaGirl yes there is no outright ban, it comes down to how the legislation is interpreted. So to be eligible for benefits one of the conditions is that you must be fully treated. What that means in this context is that you must have tried every treatment that is “reasonable” with regard to...

Just googling “gulf war illness mouse” turns up several likely candidates to follow up.

In practical terms, in Australia, the government has decided which theory to support. They’ve chosen their “medical expert” who believes firmly in CBT/GET and doctors who do not agree have their clinical recommendations for their patients ignored. So the situation is that patients are denied...

It is not uncommon that complainants’ identities are not revealed to the one the complaint is about. I think it is meant to address people’s fear about coming forward, but unfortunately I think it can also have the effect of not allowing a fair hearing.

I’m not saying people shouldn’t speculate. I’m agreeing with you about their news management and wondering if they were even aware of what the students were publishing. I also agree they should be informing anyone who is affected by the fallout what they plan to do moving forward..

The articles appear to be coming from student run news, I’m not sure how much oversight there is to what is written. I would have thought much of the detail should not be public especially even before the decision is appealed.

We wouldn’t, I misread what you wrote earlier about the encouragement provided. (I missed the “is quite inconsistent” and that changed what I thought you were saying) The authors don’t claim to achieved VO2max. They use VO2peak throughout. An RER >1.1 meets the claim for VO2peak and is adequate...

“Stroke volumes and cardiac output were related to the severity of the disease.” “The absence of differences between patients with mild, moderate, and severe ME/CFS suggests...” Sorry haven’t read the paper yet, but, don’t these 2 statements contradict each other? What am I missing?

But in this study the controls’ performance also dropped, just not enough to be significant. Because the controls’ performance dropped as well the difference between the groups was not significant. Perhaps in this case the blood sampling which resulted in a lower base hemoglobin level on day 2...

I’m not sure what Snow Leopard is referring to but not all of the studies have been exercising their subjects to VO2peak. In those that have, patients have consistently given their all and this is reflected in their RER. They don’t need a higher RER than controls.

There’s something not right if your controls are having a “significant reduction in VO2 peak between CPET1 and CPET2”. There is plenty of literature out there that says this does not happen. It’s the whole basis of it being a reliably reproducible test.

rs1801175 = i3002486 in 23andme

It is actually much worse. It’s not just positive thinking, it’s being told you can’t recover if you acknowledge symptoms or tell anyone what the program is. It is positively evil.

I think the use of the term functional means whatever the diagnosing practitioner wants it to mean. Several years back there was some communication uncovered from a well known psychiatrist to another gleefully commenting on how wonderful and useful the term is because doctors could use it and...

But so totally in character with everything else they say about us that it isn’t even shocking