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My personal experience has been that hypersomnia or increased sleeping is a feature of the early stages of ME and the early stages of major relapses. Then as you say disrupted sleep patterns and insomnia come later.

Perhaps a tangent in this thread, but I suspect a problem with ME in relation to ‘disability’ is that we collectively have not decided if we are ill or disabled. Central features of ME, such as PEM further cloud this issue. Whether I am projecting my own journey onto other people, but I had for...

I haven’t read the article itself, but the abstract leaves open if the effects observed relate to the consumption of fluid plus temperature conditions or to the temperature impact alone regardless of presence the fluid vector. [edited to clarify]

Not a constructive response give some people with Long Covid will meet the NICE criteria for diagnosis of ME/CFS. Does this represent lack of interest or deliberate ignorance? Though it would be helpful if NICE were to state that some people with Long Covid will meet the ME/CFS diagnostic...

Thank you for posting this information.

Not justifying this, but won’t most health worker contracts have a clause that if you have been on long term sick for specific amount of time, you can be fired. Certainly that is the situation here in the UK. I know when I got ill health retirement, if my pension had not been agreed, I would...

[sorry if this makes no sense, I am currently struggling linking my thoughts to useful wording] I have not bothered to look at the actual article, but there is always the problem of distinguishing between authors who use ‘functional’ in a purely mechanistic sense and those that use it as a...

I had understood transgenerational violence related to situations of historical conflict, for example in Northern Ireland where people are still dealing with the personal and societal consequences of such as the sectarian killings of their parents or their grandparents. It had struck me as a...

When I was diagnosed here in the UK in the early 1990s, I seem to recall both ME and CFS being used. If I remember correctly the Infectious Disease Consultant who formally diagnosed me used ME whereas my GP was strongly in favour of CFS. He was surprisingly aware of current research, but argued...

There must be a lot of relevant information out there, but the problem is accessing it. Over forty years ago I knew someone whose job was studying noise on nuclear submarines to ensure they were as undetectable as possible when they went silent underwater. Part of this was spending a lot of...

I would love to see research into “Schizotypal personality traits, particularly magical thinking, and hallucination proneness, appear positively related to facets of” the personalities of people researching somatic and functional conditions. I did not think ‘projection’ was such an important...

For me a big advantage of lock down during the pandemic was that it became much easier to restrict my activity levels, also other people became much better at contacting me on line. So my experience that pacing was easier and my social online improved would presumably also transfer to people...

I have in the past wondered whether having a name that uses words with everyday meanings is actually unhelpful. I prefer a name that is not obviously understandable to the lay audience, but rather something obscure that requires people to ask what it means. Any descriptive term for ME that has...

Great to see someone taking PEM seriously, but still there is an unevidenced optimism about full recovery. Already we know that a significant number of people with ME/CFS-like Long Covid will not recover and indeed some will continue to worsen and a significant proportion who first improve...

I have not read the article but do the authors have any recognition of the issues of PEM in Long Covid and for some the risks of exercise causing deterioration in health over and above any heart or lung issues resulting from structural damage that occurred at the acute phase?

Is too harsh possible in this context?

In relation to ME my heart always sinks when I read the phrase ‘evidence based medicine’ as it generally means bad evidence relying on bad science, more specifically unblinded trials relying on subjective outcomes. I also think here in the UK, as @DokaGirl suggests in Canada, policy on Covid-19...

Hasn’t Prof White, since his supposed retirement and the refusal of the FOI request on the grounds of no staff left who are able to access the data, been listed as the lead researcher in the current PACE follow up? [added - not found an up to date confirmation that Prof White is still heading...

I had to look up PFAS: taken from https://www.ewg.org/pfaschemicals/what-are-forever-chemicals.html

Presumably the LP folk could sue participants revealing the course contents in a civil breach of contract case, though presumably it would not be good PR.