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@Wonko I've no suggestions. Just want to say that you cheer me up almost daily, even with a simple, "like" of something I've said. You make me feel understood and not alone. I love your sense of humour, and your cat tales. Bring us your misery and worry, your bleakness. Don't be alone with your...

@Arnie Pye I want to get your wonderful explanatory post printed out and shoved down the damn idiot throats of all the damn idiot doctors we've endured. :thumbup::heart:

Oh, and daughter back at college! I'm sleeping in her bed, away from the snore monster. Will be lovely not wearing earplugs :)

Thank you both so much! I really appreciate your messages. @Trish I was indeed tested for Sjogren's Syndrome a few years ago, both blood test and by salivary gland. Negative. Eye doc was at a loss for another reason for the severity of my dry eye problem. If not Autoimmune, then what? I...

Oh god oh god oh god. I'm SO EFFING EXHAUSTED. Time for another whine. Thanks to you smashing people, I feel good about getting up with my insomnia, and going to lie on the couch. But still with the bloody night waking. I'm doing what I can - improving thyroid status, taking NAC. Can't nap for...

"Thinking hurt, so mostly I didn’t do it, retreating into a twilight zone, alive but not living." Yes. I live like this for hours each day. For days each month. Beyond the pain, the sheer bloody mindless boredom. She captures it well.

Oh dear me. I had no idea insomnia was a hypothyroid thing too. Looked it up. I'd always assumed it to be a hyper symptom, and that we No Energies would always be falling asleep everywhere... Yes, this is how it's always been for me - nigh on 15 years of it. Occasional up all nights with...

Thank you everybody! :) I was so alone and miserable writing that, and didn't really expect anyone to give much of a toss. Should have known better :hug: @Skycloud I'll make my couch comfier too - good idea. Husband is a snorer and I sleep in earplugs... Might become my preferred bed ;)...

Ooh, insanity as a distraction from insomnia. @Wonko, you genius. Evil mastermind overlord genius, plotting the destruction of your enemies, obvs. Merry Christmas, <<cackle>> :sneaky:

For the love of God, let me sleep! Like it wasn't bad enough I have Wide Awake night waking, now I can't even fall asleep to start with. I'm weaker and more exhausted than I've been in my unreliable memory. I'm doing the Sleep Hygiene things, and usually get up and lie on the couch, fall...

Aha, but we FEEL dead, and, at least in my case, look and act dead. I do indeed have zero useful capacity. Phone analogy for the win.

OMG I can't imagine the trauma of having eye surgery while conscious. It's up there as one of big fears. You've been through a horrendous ordeal this week. My lord, the stress you're enduring. My heart goes out to you. Thank heavens for your lovely neighbour driving you there! I hope it's not...

I'm so dejected, even though I expected this. Can barely think. Trying to wade through thyroid info to help myself. After 3 weeks back on T4 only, my blood test results are back to stupid. TSH barely above 0. T3 a shade into normal range. T4 just under mid range. WHY? If they only did TSH...

@Arnie Pye my foggy brain is telling me that bioidentical progesterone is good for post-menopausal woman to preserve bone density. Definitely look it up. I'm too exhausted to check it, sorry. I'm so damn tired. So sorry for your bad, horrible, time with doctors. I'm gonna order some T3 and...

@Arnie Pye wont the NHS test your hormones for you? Progesterone and testosterone at least? For example, I came off the pill 5 years ago, at age 37, when I read about how appalling it is for your health. After 6 months my periods were still lasting for 3 weeks. So I saw my GP and got a host of...

Great advice - I'll research T3 thoroughly before touching it - last thing I want is a heart attack. :nailbiting: Oh my gosh. I wish that you could take it. Our bodies are so strange - rejecting what they need the most. It is a bloody nightmare working it out. Thank heavens for helping each...

@TiredSam Whatever do you mean? :angel:

I think that presenting like you're challenging your diagnosis might be a good approach to take. Since there's no definitive test for ME, how can you be sure you don't have one of the other neurological diseases unless you are tested? Surely a top doctor such as she can see that your symptoms...

@Woolie I love this, it's great. I particularly liked when she said that one of our best days was probably a sick day for one of them! So true. @Cheshire Every damn doctor should be made to do this! I love it nearly as much as I love my first cup of tea of the day. That's serious love. @Sean...

FFS :mad: "Where the mind goes the body will follow" "She imagined herself a little better" Oh, I just can't be bothered. Unlike this woman I REALLY DO have ME/Chronic fucking Fatigue and can barely kick my duvet off, never mind fucking KICK BOX.