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  1. Kalliope

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    Trial By Error blog post by David Tuller: Our Exchange with BMJ Journal about "Correction" of LP Study Last Thursday, Professor Racaniello and I received an e-mail from Dr Brown. He alerted us to the news that a “corrected” version of the Lightning Process study had just been posted, along with...
  2. Kalliope

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    Retraction Watch has mentioned it in their weekly news summary Weekend reads: Researcher resigns following questions about ties to China; grad student's suicide sparks misconducts investigation; study of chronic fatigue syndrome corrected “BMJ policy requires prospective registration of...
  3. Kalliope

    Trial By Error: A Plea to Fiona Godlee on a Familiar Topic

    BMJ has "corrected" the Lightning Process study but has allowed its conclusions to stand, as far as I can tell. I will have more to say about this. Apparently, the authors have convinced the journal that the outcome swapping had nothing to do with the fact that the revised primary outcome had...
  4. Kalliope

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    BMJ has "corrected" the Lightning Process study but has allowed its conclusions to stand, as far as I can tell. I will have more to say about this. Apparently, the authors have convinced the journal that the outcome swapping had nothing to do with the fact that the revised primary outcome had...
  5. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    Yes, that sums it up. Or, as senior doctor at the Competence Service, Ingrid Helland, said in an article last year about the petition (translated hastily by me): - We try as a competence service to manoeuvre through all research from this field, including biomedical research. But we get...
  6. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    New blog post from Nina E. Steinkopf. She has sent a letter to the Minister of Health and Care Services Bent Høie whom she met with in March when she handed over the petition with over 7 000 signatures asking for the removal of the management for the national competence service for CFS/ME. The...
  7. Kalliope

    Michael VanElzakker

    Jonas Bergquist, maybe? Uppsala University's new research centre around ME will be the third in the world after the universities in Stanford and Harvard. All projects are funded by the Open Medicine Foundation, a research foundation in the United States based on private donations. In Uppsala...
  8. Kalliope

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    JAMA: Biomarker Test for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic encephalomyelitis/chronic fatigue syndrome affects at least 2 million people in the United States. Despite its prevalence, there’s no laboratory test for the disease, and its diagnosis is based on symptoms like...
  9. Kalliope

    News in brief - July 2019

    This thread has a Science for ME News In Brief post for each week in July 2019 written by @Trish and @Kalliope. Scroll down to find this week's news. Week beginning 1st July 2019 ......................................................... Trial By Error by David Tuller FOI Response from...
  10. Kalliope

    The Norwegian ME Association's report on severe ME

    ABCNyheter has written another article about the report. This time they interview Ingrid Helland, senior doctor and leader of the National Competence Center for ME/CFS. She is known for a biopsychosocial approach to ME and there was recently a petition with over 7 000 signatures asking for the...
  11. Kalliope

    Clinical symptoms and markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection, 2019, Wyller et al

    Oh, how I wish that was true, but he said the following to media in April: Norwegian professor: The criticism has been groundless Professor Vegard Bruun Bratholm Wyller believes the report from the British health authorities supports that the criticism of the PACE study has been unfounded. He...
  12. Kalliope

    News from Scandinavia

    The Norwegian Public Broadcaster (NRK) recently had an interview on radio with the former athlete Ingunn Ullerhaug in connection with covering the recent study from Katarina Lien on blood lactate accumulation. Now Ingunn Ullerhaug has written a debate article which is currently on the front...
  13. Kalliope

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    - The illness now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was first described in the mid-1980s. I thought it was described already in the 1930s?
  14. Kalliope

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    Viewpoint Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome - Anthony L. Komaroff Conclusions A great deal more is known today than 35 years ago about the underlying biology of ME/CFS. It is clear that many biological measurements clearly distinguish patients with...
  15. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Forum member and blogger @Marit @memhj has written a blog post with an overview of the chronology of the correspondence between Cochrane and the Norwegian Institute of Public Health På ME-fronten: Cochrane vs Larun; Folkehelseinstituttet har bevisst villedet og tilbakeholdt informasjon google...
  16. Kalliope

    Chronic Fatigue Syndrome and chronic pain conditions – vitally protective systems gone wrong, 2019, Pederson

    The author, Maria Pedersen, defended her thesis in Oslo in February this year; "Chronic Fatigue and Chronic Fatigue Syndrome Following acute Epstein-Barr Virus Infection in Adolescents". Principal supervisor was Vegard Wyller. First opponent was Trudie Chalder...
  17. Kalliope

    Trial By Error: My Letter to Professor Chew-Graham about the Cost of MUS

    Moderator note: Moved from this thread: Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS I have e-mailed the following letter to Professor Carolyn Chew-Graham of Keele University, who has repeatedly mis-quoted a key data point about the cost of so-called...
  18. Kalliope

    News from Scandinavia

    The Danish ME Association is running an online survey for Danish ME patients on illness progression. The survey consists of 14 questions, takes about 5 minutes to answer and is anonymous. The survey is based on a similar survey from the Norwegian ME Association which received over 5 000...
  19. Kalliope

    Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS

    FOI Response from Bristol about LP Study; Correction in BJGP about MUS Tuller has received a response to his FOI request with the University of Bristol about the LP-study and has learned: The university was informed on Feb 8.2018 that the journal had raised serious questions about the study...
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