Search results

Does anyone know anything more? This sounds pretty bad..

Haven't seen it myself, but here's a summary Microsoft translation: In today's interpellation debate, Minister for Social Affairs blamed @lenahallengren a lack of consensus on diagnostic criteria for not setting up a centre of Excellence FOR ME/CFS. Bad excuse. The Canadian consensus criteria...

This morning, I sent the following e-mail to Dr Nick Brown, editor-in-chief of Archives of Disease in Childhood: Dear Dr Brown— On June 3, 2018--that is, a year ago--you responded to a letter I had sent to people involved in the development of new ME/CFS guidelines under the auspices of the...

I sent the following earlier today to the FOI office at Bristol University. Dear Freedom of Information Office-- I am requesting information related to the trial of the Lightning Process as a treatment for pediatric CFS/ME, which was conducted by investigators from the University of Bristol...

Seems there was some buzz in 2017 when Michael Musker looked for markers by drawing blood every 7th minute and hoped results would be ready within a year. But I don't think anything has been published yet? In the article from yesterday he draws blood when the patient is feeling very bad and...

Could they mean that the authors had until today to submit their amendment, not necessarily that Cochrane will publish it by today?

Oh, I didn't know that. Here you go: Today I sent the following letter to Dr Terry Segal, senior author of a recent review of pediatric "CFS/ME" in the journal Current Opinion of Pediatrics. Last week, Dr Segal promised to "consider" my concerns. I asked her to impose a deadline on herself for...

Summary in English of a MillionsMissing event in Stavanger, Norway. Two great talks were given by patient Kristine Ruud Berdal and professor in medicine Ola Didrik Saugstad. Included are also video greetings from Prime Minister Erna Solberg, Jennifer Brea, Olav Mella/Øystein Fluge and Ron Davis.

Thank you @Barry I'll send you a DM :-)

Thank you so much! I'll send you a DM :-)

Anyone available to do a proof reading for me of a translation into English? It's not medical/technical and the amount is approximately 4-5 pages. It would be a great help if someone could check the grammar and whether some words might appear as odd choices for those with English as their...

Amazing news coming out of Congress this week! On May 23rd, by unanimous consent, the United States Senate PASSED bipartisan Resolution, S. Res. 225 “Supporting the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day”. Also, this week the House introduced an...

The blogpost has been updated with further email exchange. David Tuller has received a response from dr. Terry Segal, senior author of the review in Current Opinion in Pedicatrics that claimed LP is effective. He has also written a reply which is included in the update.

There is a collection of testimonies from 2017 on the Norwegian blog ME-livet: ME-livet: Lightning Process er skadelig for ME-pasienter google translation: Lightning Process is harmful for ME patients

I have no idea what's going on. Alternative treatments have been rather popular for a long time among the general public, but to see doctors and other health care personell embracing Lightning Process as ME treatment has been very surprising and disheartening. They are usually sensibly sceptical...