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Merged thread ME-conferences Oct. 16th-17th 2019 I think these conferences have been mentioned in the "News from Scandinavia"-thread, but as they will be live-streamed and one of the lectures is in English by Jarred Younger (via video), I'm making a separate thread so that the conferences can...

I'm not sure if this is the same thing, or something else, but Per Fink recently said in an interview that he had hired help from a communication agency and that his staff has received media training. He had also hired a combined journalist and doctor to engage in dialogue with the most critical...

The Journal of the Danish Medical Association has an article today about Director General of the Danish Health Authority, Søren Brostrøm, giving a speech to FAS, the Danish Association of Medical Specialists. Brostrøm has been a fierce supporter of the PACE trial and of ME being defined as a...

Liyang Pan: Medical education - the tyranny of guidelines and the single best answer Oct. 1st. Simplification has a place in communicating medical knowledge. It is necessary to accommodate breadth, and groundwork should be laid before detail is learnt. The practise of medicine is impossibly...

Yes, this will be interesting. I'm not aware of any similar documentation/studies on activity levels. Will be interesting to see how it fluctuates when there's no interventions. Wish there was a simple way to monitor cognitive issues at the same time as well.

Activity registration in ME/CFS Would you like to be part of developing new methods for future clinical trials? We are seeking participants for a study to test the activity device Fitbit Charge 3 for measurement of physical activity in patients with ME/CFS. The study doesn't entail any...

The revised Cochrane Review on ME/CFS was released today, October 2, 2019. We will share a more in-depth analysis shortly. However, we must immediately emphasize that #MEAction does not support graded exercise therapy due to serious risk of harms to people with ME, and that we are deeply...

New blog post from Jørgen Jelstad. This time about The Jackson Laboratory and Derya Unutmaz. ME-senter nr. 3: Betennelser, T-celler og "pasienten har alltid rett" google translation: ME Center # 3: Inflammation, T-Cells and "The Patient Is Always Right" The new ME research center is headed by...

If anyone wants to share their thoughts and join a debate on social media. The Norwegian Public Health Institute is tagged in the tweet.

Nina E. Steinkopf has had an email exchange with the Norwegian Public Health Institute after her blog post A Messiah in the Norwegian health system? This has resulted in a new blog post which includes the correspondence between them with themes as Lightning Process and the Cochrane review on...

Unfortunately, Stig Gerdes lost the case. He's still not allowed to practice as a doctor. He says to the local newspaper: - But I'm ready to fight till the end. The assault towards me and Karina can't be allowed. I will appeal. Fredericia Dagblad Gerdes-advokat: Man klipper pladerne på en ældre...

yes, that's correct

New blog post from today by Jørgen Jelstad. This time about prof. Maureen Hanson and her research into ME. It contains a short introduction of the Cornell Center for Enervating NeuroImmune Disease (ENID) and their current three main projects, some good quotes from Hanson and what they've found...

Trial By Error by David Tuller: What's up With Cochrane's Exercise Review? On June 17th, Cochrane announced that it had received a revision of a much-contested review of exercise therapy for treatment of chronic fatigue syndrome (as the organization has long called the illness or cluster of...

Mette Schøyen has volunteered for the Norwegian ME Association for almost 20 years. She and two of her daughter have ME. She's a contact personer for patients and carers with severe ME and for children/adolescents and their families. In addition she's held numerous seminars and worked towards...

I agree @Esther12 Even more strange to suddenly start bashing on a patient organisation if it was supposed to be an article only about a price given by some colleagues. But the Danish Medical Journal has now at least added a link to the open letter towards the end of the article. It's added as...

There's an ongoing debate about the article on the Facebook page to the Danish Medical Journal where the editor Bo Hasseriis has joined saying that one are welcome to disagree with Per Fink, but the article was about the prize Per Fink received by his colleagues, and not a research article...

Translation of tweet from the Danish ME Association: The ME Association is not behind harassment towards Per Fink. The ME Association has today sent an open letter to the Danish Medical Journal as a reply to Per Fink's statements in the Danish Medical Journal sept. 20th. Read the letter (tagging...