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  1. Kalliope

    News from Scandinavia

    No tickets or programme available yet. So thought I'd wait a bit until adding the events (research conference and open seminar) to the calendar.
  2. Kalliope

    Cochrane review by Hiran Thabrew et al: E-Health interventions for anxiety/depression in children and adolescents with long-term physical conditions

    This is from Aug. 15th 2018 and as far as I know not shared here already. Not sure if studies on ME patients are included in the review, but thought it was of interest nevertheless. E-Health interventions for anxiety and depression in children and adolescents with long-term physical conditions...
  3. Kalliope

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Henrik Vogt joins the debate. It is frustrating that he still believes this is just about having different opinions..
  4. Kalliope

    News from Scandinavia

    The Norwegian ME Association, Buskerud County, participated at the Stanford ME symposium and made this greeting to patients from Ron Davis.
  5. Kalliope

    CNN: Indie pop sensation's disease became his muse (about Stuart Murdoch, written by Ryan Prior)

    CNN: Indie pop sensation's disease became his muse Decades ago, ME/CFS stole his life, but music has allowed Murdoch to take back his life and shine a light on a disease that afflicts more than 17 million people worldwide. "It could be the most important thing I ever do," he said.
  6. Kalliope

    Concerns about Cochrane

    Finally an article about this from Norway. This from the editor of the Journal for the Norwegian Medical Association. This journal quite often provide translations in English of articles, so no google translations this time! Are Brean: Sannhet og konsensus English: Truth and consensus The...
  7. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    This psychologist has written a new letter to the editor, this time claiming that the petition's criticism of the Competence service is wrong. She fails to mention that she's been a colleague to Competence service, and she refers to a newly arranged seminar for physiotherapists without...
  8. Kalliope

    School Nurse Net: CDC Awards NASN $ 1,2 Million Contract

    A surveillance among pupils with ME was done by Tymes Trust in England in the 1990's, and last year in Norway (by initiative from the prime minister). Both concluded that ME was the main cause of school absence due to long term illness. Anyone know if other countries have done something similar?
  9. Kalliope

    School Nurse Net: CDC Awards NASN $ 1,2 Million Contract

    This article was published 9 days ago, but I just discovered it via a tweet from OMF. My apologies if this has already been posted. School Nurse Net: CDC Awards NASN $1,3 Million Contract September 24, 2018 (Silver Spring, MD) – The Centers for Disease Control and Prevention (CDC) has awarded...
  10. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    Another blog post from the initiator for this petition, Nina E. Steinkopf. She's doing an amazing job with collecting information and documenting how bad things really are with the National Competence Service for CFS/ME in Norway. This time she looks at the published research from the...
  11. Kalliope

    News from Scandinavia

    Last month the Norwegian ME Association had a meeting with a member of Parliament from the Labour Party. Today she has followed up that meeting by formally asking the Minister of Labour and Social Affairs how ME patients can be better helped. It usually takes some time until answers are...
  12. Kalliope

    Scopeblog Stanford: Stanford immunologist pushes field to shift its research focus from mice to humans (about Mark Davis)

    Scopeblog Stanford: Stanford immunologist pushes field to shift its research focus from mice to humans For the last several years, Stanford immunologist Mark Davis, PhD, has been pushing the immunology field to steer research away from a reliance on mice and toward humans. He recently talked...
  13. Kalliope

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    From freelance journalist Miriam Tucker, who has written some great articles about ME for Medscape. Perhaps she'll do a writeup now afterwards?
  14. Kalliope

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    First post on this page https://www.facebook.com/Hope4MEFibro/
  15. Kalliope

    LP coach on research, Lightning Process and ME (Norway)

    An excellent reply today from Nina E- Steinkopf who is also the initiator behind the petition against the Norwegian Competence Service for ME/CFS (with BPS approach and enthusiasm for Lightning Process) Nina E. Steinkopf: ME-pasienter har rett til evidensbasert behandling google translation: ME...
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