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  1. Kalliope

    Canadian Federal Health Minister to make announcement regarding ME, August 22

    ipolitics: Team Trudeau front benchers fan out to promote federal support for health research, women entrepreneurs and Yukon conservation efforts After spending the last few days making the rounds on her Atlantic Canadian home turf, Health Minister Ginette Petitpas Taylor heads to the...
  2. Kalliope

    ME debate in Danish Parliament March 12 (2019)

    Rasmus Handest, board member of the Danish Psychiatrist Association (Dansk Psykiatrisk Selskab) has written a letter-to-the-editor to Altinget, a newspaper covering political debates and the Danish Parliament where he criticises the Danish minister of Health for following the Parliament's...
  3. Kalliope

    Finland: Big article about ME from the national public broadcasting company Yle

    Yesterday Yle, the national public broadcasting company, had a big article about ME on their front page. There was also a segment on TV same evening. Here's a summary of the article. (It's based on google translation and therefore contains a few guesses): The article tells the story about the...
  4. Kalliope

    Denmark: Analysis and comments to Karina Hansen's journal from when she was sectioned at Hammel Neurocenter

    Seems there were two more articles today, four in total En halv million i juridiske omkostninger google translation: half a million in legal costs The criticism from Gerdes in his various statements about HPV, job centers and psychiatry was not always well received. Some of the doctors he has...
  5. Kalliope

    Denmark: Analysis and comments to Karina Hansen's journal from when she was sectioned at Hammel Neurocenter

    The local Danish newspaper Fredericia Avisen has two articles today about the court case concerning Stig Gerdes' licence to practice as doctor. He lost it when he became Karina Hansen's doctor after she had returned to her family because he reduced the medications she'd been put on. Karina...
  6. Kalliope

    ME debate in Danish Parliament March 12 (2019)

    The Danish newspaper for medical news - Dagens Medicin - writes today that Denmark's new minister of health, Magnus Heunicke, will follow the Parliament's decision on defining ME as a physiological illness - not psychological. Chairman for the Danish Medical Association, Andreas Rudkjøbing is...
  7. Kalliope

    Trial By Error: My Letter to Professor Chew-Graham about the Cost of MUS

    Ah, so this could be about something else then?
  8. Kalliope

    Trial By Error: My Letter to Professor Chew-Graham about the Cost of MUS

    ETA: It was first thought that Keele university had removed a blog post on MUS by prof. Carolyn Chew-Graham, but turns out the whole blog section is down.
  9. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Not as far as I know. The letters that I thought were new had already been written about in @Marit @memhj 's link. I had just gotten confused with the dates. Who knows what the next step will be. I feel anything could happen :(
  10. Kalliope

    News from Scandinavia

    The Norwegian ME Association released a 20 minute YouTube video today with a conversation between two health care workers talking about young ME sufferers. It's professor and paediatric neurologist Kristian Sommerfelt interviewing psychologist Ketil Jacobsen. They've both worked with young ME...
  11. Kalliope

    The Mind-Body Syndrome Study (2019) Maroti et al

    Agree. There's no golden mean here. They must take a look at the evidence, listen to the patients and make a choice.
  12. Kalliope

    The Mind-Body Syndrome Study (2019) Maroti et al

    They received some comments about the study in that Facebook post, and just replied (translated from Swedish): this study is very well in line with how we work at bragee rehab, that's why it's featured here in bragee rehabs's fb flow. ETA: Earlier today they said in another comment that they'd...
  13. Kalliope

    Invest in ME: International ME conference week, May 2020

    Seems the link is no longer working. Was it to this presentation or to a specific article? http://www.investinme.org/IIMEC15.shtml
  14. Kalliope

    Severe ME day: August 8 2019

    Hi @Octogenarian That was a quote from MEA's press release. I don't know further details unfortunately, but I'm sure other forum members will :-)
  15. Kalliope

    SCOPE : Q&A about chronic fatigue or Myalgic Encephalomyelitis (ME/CFS) with Dr Charles Shepherd

    Had a look at the front page of SCOPE, where there's link to another article about ME, a guest blog from a young ME patient: The impact of ME by Jenny Thisting Hi, my name is Jenny and I’m 24 years old. I’ve had Myalgic Encephalomyelitis (M.E) for 5 years but have been experiencing chronic pain...
  16. Kalliope

    Severe ME day: August 8 2019

    A letter to the editor from an ME patient in a Norwegian local newspaper. It criticises the National Competence service for CFS/ME and their psychosocial approach to ME as well as the general lack of care for ME patients. Tønsbergs Blad: Kjære Høie, jeg vet det ikke en en menneskerett å være...
  17. Kalliope

    Severe ME day: August 8 2019

    MEAction: Today, we honor and remember those with severe M.E. To honor people with severe ME today, we asked the community to submit their stories of what it is like to live with severe ME. Forty-five people sent in their stories. Below are some excerpts that broke our hearts, and have...
  18. Kalliope

    Severe ME day: August 8 2019

    Guest blog at ME Association: Severe ME Day: Life in a Nursing Homse, Light Sensitivity and Very Severe M.E. by Eira Stuart (pseudonym) I was diagnosed with Chronic Fatigue Syndrome and then the phrases “functional disorder” and “medically unexplained symptoms” were thrown about, which made me...
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