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conclusion Did K get well from the stay? Unfortunately not. It is possible that the exercise made K stronger, but unfortunately you can not go back in time and compare with a condition without exercise or other measures. When asked, K didn't think her stay had made her stronger. Graded...

Karina Hansen's forced hospitalization and treatment at the Hammel Neurocenter By Bente Stenfalk and shared with permission by Karina Hansen 12.2.13, Quote from the admission journal from Hammel Neurocenter: “The initial triggering cause may be related to mononucleosis, but this is uncertain...

Many will remember the horrible Karina Hansen case from Denmark. A young woman with severe ME who got sectioned and taken from her family's care to undergo treatment from psychiatrists Per Fink and Nils Balle Christensen. They believed she suffered from functional disorder. Her family was not...

The Danish local newspaper Ugeavisen Esbjerg has written many articles about ME. They've followed for a long time a story about the young and severely ill ME patient Marie Louise and her family's fight against the system. She was initially refused any kind of help, but today the newspaper...

Discover Magazine has an article about the study: Elite Athletes Get a Performance Boost From Special Gut Microbes If Veillonella eat lactate, maybe these athletes don’t feel so much of the burn, allowing them to do well at these high-endurance events. But, the researchers learned, the story is...

Meta-omics analysis of elite athletes identifies a performance-enhancing microbe that functions via lactate metabolism - Jonathan Scheiman et al The human gut microbiome is linked to many states of human health and disease1. The metabolic repertoire of the gut micro-biome is vast, but the...

This seems like good news :)

Merged thread Worrying tweets from Jane Colby on Tymes Trust and social workers refusing to talk to them

Seems Charles Shepherd really tried. Michael Sharpe, one of the authors of the widely discredited PACE trial (https://www.meassociation.org.uk/…/me-awareness-the-pace-t…/) has expressed his thoughts on ME/CFS and internet activism in The Guardian. His comments imply that individuals with ME...

he (Tuller) was instrumental in persuading the respected science journal Cochrane Database of Systematic Reviews to withdraw a paper that looked at eight randomised controlled studies of exercise therapy for ME/CFS. Sharpe says that the Cochrane editor “wilted badly… under direct pressure” from...

The news site ABC Nyheter delivers once again with another article on ME, referring to the report on severe ME from the Norwegian ME Association. They've interviewed a 31 year old woman with severe ME. She says it's only thanks to her boyfriend and her mother that she has had some help. Next to...

This is a comment from the New Statesman online editor Hettie O´Brien from July 19th. I don't think it has been shared in the forum, and thought it was an interesting read. Nothing new though, but it's good to see critical thoughts on CBT and mindfulness from the media. In a report published...

Towards the end she talks very warmly of MEAction, Solve ME/CFS and OMF and recommend patients and carers to get information from them. She also talks about Invest in ME as an example of good things happening internationally.

Yes. Some of these stories are quite uncomfortable reading and one could hope outsiders discover there are some very problematic aspects with "functional disorders" and how they are dealt with: This could be read as rather critical to the advice that comes following being diagnosed with a...

The title is from one of the interviews with a parent Mie’s parents had a strong conviction that no sufficient explanation for their child’s symptoms had been provided. Both parents expressed frustration with the medical examinations that had been performed, as they did not feel that a possible...

Is there any online information about recruitment for the study?

Yet another article about the report from ABCNyheter. This time as a an editor's comment by Kathleen Buer where she asks people to stop judging those who are sick as it may lead to worse prognosis. Low status of certain illnesses leads to less research, lack of treatments and as a consequence a...