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Well, as mentioned in the letter from the Countess of Mar on the first page of this thread, he invited her to lunch, which indeed sounds higher up the hierarchy than coffee, as befits a Countess - but, when she arrived he presented her with just a bottle of water and left her to buy her own...

Wow. From that article:

When that consultant said that to me, he told me I could go look up the paper or article in which that claim was made in our medical library, where we had Medline or whatever the primitive computerised journal database was called back then. I read the paper, dismissed it as a load of hooey, and...

Having acquired ME in 1983, I was there in the days when ME was only Ramsay-definitioned and considered a physical illness, not mental. It was accepted as a post-viral state that some people got slapped with after having had one of a number of specific viruses such as Coxsackie, EBV...

Unfortunately I have every one of them plus a few more. Back when I used to go to doctors before I gave up, I narrowed it down to the most pertinent few rather than hit them with my own personal laundry list. But never mind, most/nearly all doctors think it's just 'fatigue' or 'tiredness', no...

I think that was discussed here somewhere recently - maybe it was to do with these posts? https://forums.phoenixrising.me/threads/petition-opposing-mega.47466/page-44#post-786584 https://forums.phoenixrising.me/threads/petition-opposing-mega.47466/page-47#post-786677...

That's excellent to hear.

So ironic how Lloyd, self-proclaimed 'Australia's Leading Light' as regards ME/CFS, demonstrates lack of any understanding at all of what ME/CFS is. (Hint: Dr Lloyd, ME is not 'the extreme end of the fatigue continuum', it's something else entirely, something much, much worse than that. Why...

I noticed that. She had already given him her email address several posts earlier, yet he then tells her to contact him. Why should she have to make the first move, over something he wants to discuss? That's rude, and lazy, no matter what part of the world one is in! :rofl::banghead:

Wow, that makes it all the harder to understand why someone of that status would spend his time publicly insulting disabled people on Twitter. Mind = boggled.

Something I noticed, and I think others have too, is that whenever there is either a Parliamentary debate on ME or a major news article favourable to ME sufferers, someone suddenly turns up on social media spewing hatred at ME sufferers. Blanchflower's trolling appeared soon after the recent...

Blanchflower blocked me just for 'Liking' some of the replies to his troll tweet comparing his broken ankle to ME (if you missed that, he declared that because physiotherapy cured his broken ankle, then GET should cure ME, and any ME sufferer who disagrees is a 'whiner') - I didn't even post to...

The study is truly absurd and patronising drivel. I thought it had quietly dropped out of existence due to a combination of derision and lack of interest, so it's rather surprising to see that they're still trying to recruit. Still no/not enough takers, since 8/9/17? Gee, I wonder why that is.

Maybe because they're still thinking about how best to word their reply to make themselves look like they're still the experts and that the 'hoodwinked-by-anti-science-militant patients' MPs were conducting themselves unbecomingly. Still, we can hope they just keep quiet, for a change.

LOL, amen to that!

I completed the questionnaire (although I agree that it was hard to read with the tiny typeface and dense blue background). I, too, found some of the questions worded such that it was hard to answer them in a relevant way for someone with ME, for example the 'motivation' stuff - I simply...

Exactly what evidence-based treatment would that be, then? Still conflating ME/CFS with chronic fatigue, and still pushing her belief that either can actually be 'treated' with talking therapy. And we taxpayers still footing the bill for anti-science and potentially harmful twaddle. There...

Yes, this bit had me in stitches: LOL, opinionated science reporters. So, from the horse's mouth, an explanation as to why their science coverage is so cringemakingly biased!

Yes. A good friend who is a kind, sympathetic and understanding person, is currently unemployed and having problems finding a good job as opposed to terrible ones his Job Centre tries to foist on him. Feeling stressed out he said to me "You're lucky you don't have to work." After getting over...

She blocked me too - I had only just joined Twitter and been a member for a mere few weeks, when I discovered that she had blocked me! I don't know her, she doesn't know me, I've never had any contact with her, and I rarely ever post on Twitter at all, I mostly just Like/Retweet, so don't know...