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Yes! All of those points exactly apply in my case too. And only since I became ill, never before. I even had one instance of phlebotomists putting tourniquets on my legs and trying to draw blood from my feet (which didn't work either), because they couldn't get any out of my arms. What seems...

Ah, it was dubiously obtained? There are copies of it dotted about all over the Net, but it's unfortunate if it can't be used to quote from - I guess because it has 'not for circulation' scribbled on the front page. I actually remember that quote being reported on when it was said back in...

There was also his statement during his speech at the 1994 Eliot Slater Conference that 'I will argue that ME is simply a belief, the belief that one has an illness called ME'. He probably doesn't have that one catalogued on his site, LOL.

Prof Sharpe has just deleted his tweet where he said ME patients are surely too ill to produce so many complaints and FOI requests. So now in the many replies, his tweet is missing. A few folks had already screenshotted it, though, such as: And also such as Lucibee's post #77 earlier in this...

Same here, wonder what that's about? Hopefully someone just mistakenly copied the new page's format from an existing one on schizophrenia and forgot to change it, and not that NICE really thinks ME is psychiatric despite their not mentioning psychiatric hypotheses!

I'm truly shocked that the MEA would promote this article - could it have been in error? It's so bad on so many counts and potentially dangerous in its 'advice'. Yikes. Dietary improvement can help, but the rest of it - just no. Wow, if only yoga really could accomplish all that. I used to...

Version 2 is great. There is one word I would change, though: in paragraph 2 line 5, 'speakisg' needs to be changed to 'speaking'! :)

I have no idea what to make of my results, I did kind of think the site would provide at least a little commentary on what the results mean, as many other testing labs do. I Googled on the names of the bacteria listed in my post above but nothing much turned up. But if you're seeing an ENT...

Well, maybe what Parker says about the brain being able to change the physiology is true, because my physiology felt like it was going to upchuck my lunch after my brain observed those videos, whereas prior to watching them, I didn't feel like that. That does sound a likely motive.

Same here. But, I discovered that if I try the Google Cache version, I can read it - the formatting is all over the place, but it is at least possible to read the article. See if it works for you (I use Firefox, am not sure if this will work for all browsers)...

What on earth is the point of this ridiculous study? And how many taxpayers' pounds are paying for it, that could have gone to good research instead. Grrrr. Arrrgghhh. :speechless::sick: [/rant]

Ah, OK, that's why I can't find it! I did think the format looked like it had changed since I last looked a couple of months ago. And yes, I'm not terribly impressed either - when I checked their site after six months of no results, there was a pop-up asking me to rate them on a scale of 1-10...

Sorry, I don't see anything about 'diversity percentage' in the report page - where would I find that? There is a section called Microbial Diversity in a list on the left side of the screen but it's only available for gut microbe tests, and everything else I click on also requires purchasing an...

Finally just got the results of the throat swab, after only a nine-months wait! They said the nose swab was unable to be processed and to contact them for a re-do, but being outside the US and the postage costing a fortune, I'm not going to re-do. The throat results, if anyone wants to...

A PDF from the talk is up now: http://irvinginstitute.columbia.edu/pdf/How_Not_to_Conduct_in_Randomized_Clinical_Trial_Levin.pdf . Good stuff!

That's great, I look forward to seeing the video. Thanks for asking them about it, Dr xxx!

Strangely, the BristolCMM Twitter account is now back up, at least at the time of this post, and yesterday's critical tweets are still there. o_O Very surprising that it would re-appear, and intact - wonder how that happened, and how long it will stay up?

Spot-on. As someone who acquired ME in 1983 defined by Ramsay's description back before 'CFS' was invented, and taken seriously as a physical illness by the doctors who did believe it was 'real' (some didn't, but many did), I hear you 100%. As well as Ramsay ME, so many unfortunate people with...

Wonderful to see that Dr Kerr is back in the UK and in the ME field again. :thumbup:

It is nicely written, but I wish so much that the 'What are the symptoms of ME?' box didn't perpetuate the myth that ME is tiredness: "The main symptom of CFS/ME is feeling extremely tired and generally unwell." They did add 'generally unwell', but that's very vague; feeling tired and generally...