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Yes, the organisation who published the question has now retracted it and apologised, which is very good of them. But one wonders how something that blatantly bad made it past their content reviewers in the first place!

Oh no, that's a shame, I'm sorry to hear it happened to you too. In my case, they didn't specify whether it was the throat or the nasal swab, maybe that means it was both?? I did follow their instructions on how to take the samples, so am not sure how a 'sampling error' would have occurred...

@Inara and @TigerLilea , good to hear that you both got some actual results back - I was beginning to have my doubts as to whether anyone would! Hope the results will be of some usefulness for you both. :thumbup:

Ah, you were lucky! I heard from them today too, but with less than helpful info: Argh. Not very impressed after waiting six months. If sending me another kit 'free of charge' means another $20 postage from them to me plus another $5 postage from me to them, I'll have to give up and resign...

The stupidity of CFS Research's replies on Twitter often astound: Well yes, those indeed "aren't really synonyms" - that's because the CDC didn't "rename" them, they are entirely different things... :banghead:

Does this person seriously think someone of Prof Levin's stature would pass judgement on a paper without having actually read it? I'm unable to comprehend the standard MO of BPS-ers of automatically assuming that none of their critics ever read a document they're criticising but are just...

I've just been to the blog and couldn't see any comments either, but then I tried clicking on 'Leave a Comment' just on the off-chance, and then all the comments showed up, so give that a try!

Excellent document - just one thing aside from the above observations, struck me as maybe needing rephrasing: "The patient community has been publicly vilified by the trial authors and colleagues but they have turned out to be right." It reads as not clear as to whether it was the patient...

But, NICE did take seriously the idea that thinking yourself well and exercising is a cure for ME/CFS, so much so that it did shape NICE's treatment guidelines for this disease. That hogwash was published in a journal considered (at least, in years past) reputable. Can any mainstream medical...

Oh good grief. There's so much wrong with that extract that it's impossible to know where to begin. I guess one thing I can pick to say is: what 'evidence base'? Also, I think he uses a lot of big words but doesn't really know what they mean.

My immediate thoughts exactly. Having worked for the NHS as an IT engineer for many years, during which I had to cope with frustratingly outdated kit, insufficient tools/software for the engineers to carry out our duties so that we had to buy our own, and dealing with big expensive 3rd-party...

That happened to me. My history is a bit complicated: I acquired ME in 1983, then was one of the lucky few who recovered, in 1990, following medical drug treatment prescribed for me by my then-GP, back in the days when GPs were allowed to think for themselves and not constricted by having to...

It might be a bit of an 'own goal' though, if folks he retweets it to actually read the attached comments. People politely engaging with Vigo only for her to lash out at them with ad homs, her insistence that Googling for several-years-old sensationalist newspaper interviews constitutes...

Absolutely. Very well said.

This probably explains a lot about the poor quality of the article and why the only 'evidence' she could give was old news interviews with Wessely.

Yep, I just asked her for the 3rd time for documented evidence of all the harassment and death threats she claims. She never replied to my requests, but to other folks who ask for same who she has replied to, she just points them to Google, tells them that there is plenty of evidence if they...

I went and made a couple of tweets, and seeing her replies to mine and others, she is noticeably out of touch, apparently unaware of everything that has happened in mainstream media re ME in the past couple of years. She only refers to old sensationalist news articles from several years ago when...

What struck me about the above extract from the article (I can't bring myself to go off and read the whole thing) was how outdated her sources are. The Independent article she links to was from 2012 when that invented narrative about rabid militant ME activists and death threats was at its...

Oh, that's fantastic. Does CBT help pathological liars, maybe he needs a dose of his own medicine? He seriously underestimates the ability of pwme to do the detective work to dig up these inconvenient documented truths.

I just wish SO much that the media would stop trivialising it by describing it as "extreme tiredness" and "As well as fatigue, it can cause sleep problems and muscle and joint pain", as the BBC did there. It makes the illness sound like not really that big a deal. If all I had was extreme...