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Fantastic to hear that ITV is going to cover this. First Channel 4 News recently did two pieces on the true reality of ME, and now ITV! So great to see mainstream TV news channels finally reporting on this serious ongoing horror.

Looking at those quotes from Shorter, and remembering other nonsense he's said over the years about ME, he comes across as a very bitter, unhappy and hateful person. I wonder what happened earlier in his life that makes him fixated on one specific disease and on the continual smearing of its...

I love David Putrino. Am so pleased that he is not afraid to tell it like it is, forcefully, with no holds barred. We need more like him! Especially in the UK, where there's an unfortunate shortage of folks willing to put their heads above the parapet.

Wow, I missed the broadcast but just now watched the YouTube video posted here, thanks for the link. So fantastic to see Channel 4 take this topic up again! Another very well-presented, thoughtful and realistic piece .Huge kudos to them.

Aha, that's not the same - that contains a photocopy of the original lecture notes, not just a transcript. Good find.

Absolutely. Twitter is what you make it. If you follow good people, you'll see good posts. If you follow horrible people you'll see horrible posts. I see a few horrible ones that get retweeted by good people in order to show how horrible those posts/posters are, which is fair enough. I mostly...

Absolutely right. When improving from any illness, people will simply instinctively start trying to do a bit more and if that goes OK, a bit more, and so on. No need for multidisciplinary teams, special customised physiotherapy programmes, encouragement by therapists/psychologists/life...

It might help to know that many ME/CFS patients (and other patients too, for that matter) were ourselves doctors, scientists, researchers, statisticians, technicians, or similar professions before we got ill. Becoming a patient doesn't cause us to lose our qualifications, our experience or our...

Hooray, excellent to see this important response now freely accessible for all to see. :thumbup:

Oh man, NICE's response is so good to finally see after all this time. It's all so well-said and reasoned. I fervently hope it will become un-paywalled but it's great to see full copies of it in various other sources in the meantime. This really needs to be widely seen. And yes, I specially love...

Ugh, I saw this on Twitter this morning and was utterly disgusted. I had to control my 'effort preference' to refrain from using a lot of rude words in response to it!

Wow. Just watched it and it was amazingly sympathetic, couldn't believe what I was seeing. It was presented as being critical to the idea that ME was a made-up illness or 'all in the mind', but that it is rather a real physiological condition that is triggered off in some people after a virus...

Yes. However polite, reasonable and well-evidenced a message, he will inevitably twist it into 'anti-science militant loony attack on beneficent scientist just trying to help those poor patients'. After all, this is the guy who claimed that a verse from an old Bob Dylan song quoted in someone's...

Yikes. The number of customers who said the seeds have fallen off and ended up in their ear canals is very worrying. It's bad enough that they're useless rubbish, without the added issue of their being potentially dangerous to the inner ear.

Well then, why not actually TALK to the patient and ASK them which came first? Simples. :banghead::wtf::grumpy:

There's a NICE care plan?? This is the first I've ever heard of such a thing. This exactly. My care plan would consist of 'Do nothing'. Well, at least then they won't be doing actual iatrogenic harm, such as CBT/GET, so there's that. ETA: Ah, thanks for the link, @MrMagoo , interesting to see...

I've just completed the survey and to be honest, it really doesn't have any relevance to the disease ME/CFS, or any other chronic disease, at all; the questionnaires used in the survey are for asking whether someone has psychological issues, entirely divorced from whatever their physical health...

Well, as Trudie Chalder was one of the authors of this piece, of course she would find her very own CFQ a valid and reliable tool. A remarkably flagrant case of marking one's own homework there!

Oh FGS just stop, please stop, aaarrghhhhh. Enough of the 'studies' on how people with ME worry or are anxious etc etc etc ad nauseum and how 'further research is needed' to continue 'studying' this pointless BS. :yuck::dead::ill::wtf::banghead::eek::emoji_face_palm::emoji_scream: /meltdown

Ah, thanks, so she was talking about Chronic Fatigue Syndrome, then, not chronic fatigue. Ugh.