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Based on that graph...these researchers are looking up at the stars and drawing constellations.

A local park had so many ducks people complained about it. They were probably fed up with seeing poop everywhere. So they killed some of them. Pretty sad.

So CBT made patient feel a little better emotionally but didn't help their autoimmunity/brain damage/coagulopathy/whatever LC actually is? Color me surprised.

Why don't you stop telling me to watch ducks in a pond, medicine, and work on a drug that will let me live a meaningful life again? Do you know how it feels to suffer from ME? No. You don't and you refuse to listen. You want me to watch ducks? Take your stupid ducks and throw them to bottom of...

I think people are confusing cumulative and incremental risk. Imagine this: Infections: 1, risk: 10% Infections: 2, risk: 15% Infections: 3, risk: 18% Infections: 4, risk: 19% Infections: 5, risk: 20% The cumulative risk continues to increase indefinitely, getting closer and closer to 20%, but...

If you can achieve this noninvasively, like with neuroimaging, then now you're talking. There's also EEGs, but they don't measure much from deep inside the brain.

Did someone ring? If they actually screen for PEM, exclude patients who have it and remove those who develop it, it won't be dangerous to pwME. However, I don't trust they will do that in practice because we've been burned so many times before. Also, our opportunity for learning is pretty...

With ME, usually the best approach to sleep is be like a cat and sleep whenever you feel like it. Most of us have no jobs and rarely leave the house, so it's often practical. I have non-24, so my sleep cycle is about 25-26 instead of 24 hours long, and I sleep 10-12 hours a day. While my sleep...

Why is the medical community still ignoring long COVID? https://thehill.com/opinion/healthcare/4011212-why-is-the-medical-community-still-ignoring-long-covid/ By someone who got ME in 2017. Extensively discusses how doctors ignored PEM and that they need to pay attention to it.

You need good-quality headphones or large speakers to reproduce frequencies that low. Worse, your display needs to run at at least 80Hz to reproduce a 40Hz flicker. It takes 1/40 s to display both white and black, so it's white at one point and black 1/80 seconds later. Also, videos and...

They don't rent the whole building. From https://fortune.com/2021/10/04/instacart-ceo-fidji-simo-womens-health-startup-metrodora-institute/

Seems like quackery. There's many forms of magnesium with high solubility in water and thus high bioavailability.

Publishing negative results is absolutely essential for scientific progress.

They opened last month:

Metrodora clinic, which the Instacart CEO announced founding a while back, is now open and taking patients. They specialize in a wide range of conditions, including ME/CFS, long Covid, POTS, connective tissue disorders, and IBS. Almost all of them share a common thread: They're poorly understood...

There's a deep unfairness to the terms medical harm. My best guess is that the author means it's a health problem that is either measurable or might kill you. Thus, inability to take care of yourself, work, or have fun aren't counted. Symptoms whose causative pathophysiology is not known don't...

This is blatantly obvious. I would extend that by saying people in racial/ethnic minorities are treated with disrespect or given inadequate care frequently, and that this needs to be changed immediately.

Biggest problems with the article: ME claimed to be extreme tiredness. No mention of differentiating symptoms like PEM Says to talk to your doctor if you might have ME, without mentioning likelihood of being discriminated against Implies ME causes extreme sleepiness Mentions correlated with...

I've been to Cleveland Clinic where every single doctor believed I had a medical problem. They seriously suggested I might have an autoimmune or metabolic disorder. I've received many obscure tests, including for rare autoimmune diseases. I'm getting neuropsychiatric testing next week and a...

I hope we don't have mice running around our server.