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  1. Kalliope

    Concerns about Cochrane

    “We know that the biomedical journals publish articles which are neutral at best, but are mostly positive and tend to emphasize benefits and downplay or even ignore harms,” says Jefferson. “What you end up within the medical journals is a shoe-horn version or a summarized version and you don’t...
  2. Kalliope

    Concerns about Cochrane

    BMJ EBM Spotlight - Cochrane - A sinking ship? By Marianne Demasi, PhD It began as a simmering personality clash, between the CEO and a board member, but now has boiled over into a spectacular war of words, where the underlying issues of Cochrane have bubbled to the surface, with many insiders...
  3. Kalliope

    Concerns about Cochrane

    “There appears to be no confidence in the management board at this point,” Jefferson said. “I think the only honorable thing for the rest of the board to do is resign.” What a mess..
  4. Kalliope

    New Album - Songs of Silence by Anette Gilje

    Now in German version! http://phonofile.link/leise-lieder
  5. Kalliope

    Concerns about Cochrane

    Sir Ian Chalmers is currently on the front page of the Norwegian broadcasting company in an article about being critical to research claims. I wonder if the timing is entirely coincidental? NRK: Slik unngår du å bli lurt av dårlig forskning google translation: How to avoid being fooled by bad...
  6. Kalliope

    David Tuller: Trial By Error: The Cochrane Controversy

    Here's another tweet I thought was interesting, but left it at the Monaghan thread. https://www.s4me.info/threads/how-to-follow-up-on-the-carol-monaghan-debate-in-westminster.2513/page-5#post-104495 I don't know if the phrase was "not becoming of an MP" or "unbecoming of an MP", but he now...
  7. Kalliope

    David Tuller: Trial By Error: The Cochrane Controversy

    I wonder what he means by "expert advice"?
  8. Kalliope

    Concerns about Cochrane

    The BMJ: Cochrane HPV vaccine review: BMJ journal defends "inconvenient criticisms" Defending the paper this week in an editorial in BMJ Evidence-Based Medicine,5 Heneghan and Onakpoya said, “We acknowledge that articles in our journal will seek to hold organisations to account and should not...
  9. Kalliope

    News from Scandinavia

    The Norwegian ME Association - Rogaland County - is about to launch their project on adapted education for children and adolescents with ME. The result is a "tool box" consisting of a lecture with PowerPoint presentation, four animation films and a booklet which will be presented at schools...
  10. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    New blogpost from the initiator of the petition. Ikke min kompetansetjeneste google translation: Not my Competence Service She leads with a story about an ME patient's consultation with a senior doctor at the regional hospital, department for infectious diseases. The doctor said there was no...
  11. Kalliope

    Epigram: Senior Bristol researcher resigns after admitting to research misconduct

    @BristolCMM is back on Twitter, now as "The (un)official Twitter account for the School of Cellular and Molecular Medicine at the University for Bristol, UK"
  12. Kalliope

    Concerns about Cochrane

    A bit OT but as the theme is Cochrane and this is a patient forum, I thought someone here might be interested to have a listen:
  13. Kalliope

    Concerns about Cochrane

    Huh. Didn't know that. You are right, his name pops up at NIPH, but can't find a job title. https://www.fhi.no/personer-og-kontaktsteder/senter-informerte-helsebeslutninger/sir-iain-chalmers/
  14. Kalliope

    Column in Times by Sandi Toksvig on women's health refers to MUS

    Oh, that's a great idea if @JenB connected with Sandi Toksvig. I adore Sandi Toksvig. And my impression is that she has increased her interest for medicine after one of her children started med school. Thanks for sharing the link @JohnTheJack !
  15. Kalliope

    Concerns about Cochrane

    That's not my impression, but then again only from an ME patient's perspective with compatriots in Cochrane reviews on Exercise Therapy and CFS. Despite lots of criticism for their work, the Norwegian Institute of Public Health (where the reviewers currently work) is doing nada.
  16. Kalliope

    Concerns about Cochrane

    If anyone wants to tell about David Tuller's blogpost on Cochrane, or otherwise bring their attention to Cochrane, ME and GET/CBT, here's the Journal's Facebook post on the article. (too foggy headed now to do it myself). If you prefer to contact the journalist directly her name and email...
  17. Kalliope

    Concerns about Cochrane

    Ugeskriftet: Is the glow surrounding Cochrane paling? Ugeskriftet for Læger - The Journal of the Danish Medical Association - is Denmark's main scientific journal within the health and medical fields. They've written an article about Cochrane as it is having its annual colloquial this...
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