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That's what I am wondering; how do we create that noise and what are those tools? We have had the billboards campaign you referenced, multiple reports since 2002, George Monbiot's articles, pieces on Channel 4 news, #MillionsMissing campaigns, yet nothing is shifting the dial nor gathering...

Great wording; may I borrow it? Thanks.

Especially when the government have announced endless programmes aimed at getting people back into work, but are not investing in getting a huge chunk of people well. If nothing else it would be a decent return on investment, without the human cost of doing nothing. We need to keep applying...

Not sure what sort of issue it is, but these folks are great for any benefits question, if you are on Facebook; https://www.facebook.com/groups/278260135547189/

Oh my goodness, same :hug: This makes me so angry. How dare they. How dare they put their egos and careers over literal lives. Why do they get that choice?

The willful blindness of it astounds me

Yes. Somehow that's our fault as well, for not doing it "properly", believing enough or trying hard enough

Yes. these two statements seem to be the crux of the issue. And when we explain the opposite is true, and that we are still ill, we are labelled as vexatious, difficult, emotional and don't know our own bodies or understand our own experiences and need to be "educated" by "experts" there is a...

Seconded. :hug: It is beyond frustrating. :banghead:

I couldn't anything about it on their page.. previous conversations about have been mixed

Or there is currently no suitable test? Absence of evidence is not evidence of absence If 100% recovery is possible, according to this, why do definitions of recovery so often equate to "adapt to a smaller life" instead of the dictionary definition; recovery; a return to a normal state of...

Exactly what I was thinking as I read your message. Also, what's wrong with visible? (Which includes funcap) You can use a free version, and personalise the symptoms you track so what's exactly relevant to you over time. The NHS have no issue with recommending external sources, when it...

Thanks, just wanted to be sure that I had completely understood and that once again we have been completely unheard. Everything about us without us. And from a patient representing charity.

So the MEA have spend already incredibly limited funds raised by patients, on a long, impractical questionnaire, that used cherry-picked feedback, doesn't compare between patients or between patient responses, doesn't have a ceiling or a floor, merges mild with moderate and allows clinics to...

Yes. That's a better way of putting it. It is a refusal to let go of the belief that "this works, we know It works" in the face of all evidence, not only to the contrary, but of actual documented harm. Ironic; the false belief issue isn't with patients.

Yes. Exactly. It's not cost effective, in fact it is the opposite, because patients are not getting better, which means we need more healthcare for longer, because we remain chronically unwell and need more access to mental health support to try and live with the unacceptable, and social care...

Because there is a belief mismatch; they think we are genuinely delusional and don't understand that we are not unwell and therefore need to be helped, not enabled, and they have had academic training so know far more than we do and need to be imparters of wisdom. It is hierarchical and...

It's so obvious when you say it like that. Which raises its own questions. They can't possibly deny it at this point; it would have to be willful blindness. But, as has been pointed out is elsewhere, on this thread, or elsewhere on this forum, they think it is those other therapists who are...

It doesn't say which NICE guidelines though; CG53 or NG206

Anyone else have questions....? Is the complexity the real-world or patients seeking treatment and not rehab and goal setting?