If you have a look at the amended abstract they propose (last page), it's not revolutionary (nothing like "CBT and GET are ineffective", but the accumulation of "mays" seriously undermines the claims of success). That Larun et al. couldn't sign this is telling.
Like the Lancet?
If there is something I learned since becoming sick, it is that you always have to check by yourself.
By this standard, we should trust Wessely and ignore the Cochrane rebutal made by @Tom Kindlon and Robert Courtney.
Posts relating to "The prevalence and impact of psychoneuroimmunological factors in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Treatment effects and mechanisms of action of Acceptance and Commitment Therapy" have been moved to this thread.
Some interresting considerations about trials methodology (CoI, selectivity in publishing trials with positive results, gap between patients selected and real life patients, scales, what is used as a placebo...)
Rings a bell...
Can someone explain how these unconclusive results end up in this conclusion?
"neither adolescent perfectionism nor beliefs about emotions accounted for variance in subsequent fatigue or physical functioning" but nonetheless "Parental representations could contribute to fatigue maintenance."...
And instead of questioning these researchers and therapists about the validity of their therapy, this opposition of the patients reinforces their belief that patients are delusional, thus more treatment is even more needed.
Circular reasonning once again...
Yes, how many have been told over and over by authority figures that all their problems are due to child maltreatment? How many have been looking back to their personal history trying to find some clues or events that could give some meaning to what's happening to them before the trial had even...
Interresting thread by brian Earp, author of the study, about its media reception (and distortion):
Or on thread reader (more easy to read than on twitter):
https://threadreaderapp.com/thread/1098369029088178176.html
I undertand you may not be able to say more, but if you can, in what context was that said? Was it an admision by SW of the flaws of PACE or someting else?
@Jonathan Edwards @Brian Hughes @Carolyn Wilshire
Do you know of any other examples of researchers trying to shut down criticism in such a blatant way? Is it something frequent or very rare?
Yes, the lack of personal control is attributed to the patients perception. That is completely stupid.
I have another condition which is far better known than ME. I have a very strong sense of personal control for this condition; whereas I barely have for ME (I do not control anything, exept...
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