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  1. Cheshire

    My Label and Me: I’m not tired and lazy, I have ME

    @Action for M.E. Can you please clarifie your position? On one hand you criticize the PACE trial, and then tweet an article promoting the therapies this same trial tested. I am sorry to say I don't see any coherence in your decisions.
  2. Cheshire

    The invisible burden of chronic fatigue in the community - a narrative review (2019), Fatt et al

    Despite having no choice but admitting the limitation of CBT/GET, the BPS proponents never question their necessity, it's because "the therapies are not given soon enough, or not in the correct way, or not enough sessions, or patients aren't motivated", and so on. That never ceases to astonish...
  3. Cheshire

    Does Positive Thinking in Pregnancy Boost Children's Maths Skills?

    Well, the authors' mothers did a poor job during pregnancy at expecting them to be logical and rigourous ...
  4. Cheshire

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Yes, I agree, but there seems to be a change. "Brilliant account" to qualify a paper that clearly takes sides against the BPS contrivances, is strong (even though the rest of his statement is, a you say, very vague.) I may be too optimistic, but maybe he's starting to see things in a different...
  5. Cheshire

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    For a little bit of background: https://en.wikipedia.org/wiki/David_Colquhoun "Colquhoun runs the website DC's Improbable Science, which is critical of pseudoscience, particularly alternative medicine, and managerialism"
  6. Cheshire

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Interesting: Hilda Bastian was co-founder of the Cochrane Collaboration and its Consumers and Communication Review Group. https://blogs.plos.org/absolutely-maybe/about-hilda-bastian/
  7. Cheshire

    Current Research Project: Understanding the neural mechanisms of fatigue & memory impairments in CFS/ME & Multiple Sclerosis using fMRI

    This thread, previously in a 'members only' forum, has been moved to a public sub-forum. If anyone is concerned about their posts being in a public sub-forum, please contact us.
  8. Cheshire

    A general thread on the PACE trial!

    Posts relating to the UK Health Research Authority's answer to MP's questions have been moved to a new thread.
  9. Cheshire

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    They nonetheless investigated 3 separate issues. Conflicts of Interest Availability of data for secondary analysis Alterations in the outcome measures used :sick:
  10. Cheshire

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    From the HRA document But they found that: How did they arrive to this conclusion? :jawdrop: And so? WTF
  11. Cheshire

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    Michael Sharpe makes it look like PACE has been totally cleared: When the report says:
  12. Cheshire

    Who Reviews ME/CFS Applications for NIH? Jennie Spotila

    Read more
  13. Cheshire

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    Posts discussing IAFME, Forward ME and the roles and relationships of ME organisations have been moved to this thread.
  14. Cheshire

    United Kingdom: BACME Guidelines for Severe ME, 2019 and 2024 update

    No, this is not in the new guidelines, but is in the section 'what is ME and CFS' of the Sussex & Kent ME/CFS Society website.
  15. Cheshire

    United Kingdom: BACME Guidelines for Severe ME, 2019 and 2024 update

    Considering who the MEASussex is collaborating with, there are reasons to be concerned: https://measussex.org.uk/what-is-me-or-cfs/
  16. Cheshire

    UK Parliamentary debate today - Thursday 24th January 2019

    Besides all the limitations such a debate inherently has, "the discredited PACE trial" was a blatancy for everyone. Who would have bet that with certainty a few years ago?
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