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  1. Cheshire

    Tuller / Trial By Error: My One-Sided Correspondence with Professor Crawley

    http://www.virology.ws/2017/12/04/trial-by-error-my-one-sided-correspondence-with-professor-crawley/
  2. Cheshire

    NYT A Failure to Heal / What happens when a clinical trial fails?

    https://www.nytimes.com/2017/11/28/magazine/a-failure-to-heal.html?smid=pl-share
  3. Cheshire

    I’m A Doctor With Chronic Illness. Here Are 12 Things I Wish People Knew (HuffPost)

    There was a French article a few days ago not about doctors who have chronic illness, but who used an app to simulate daily life with a chronic illness. Even that far from reality experience was an eye openner for them...
  4. Cheshire

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    This man faced death threats and abuse. His crime? He suggested that ME was a mental illness https://www.thetimes.co.uk/article/this-man-faced-death-threats-and-abuse-his-crime-he-suggested-that-me-was-a-mental-illness-t250dr25xg5 See this thread for more ugly criticism of "activists"...
  5. Cheshire

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    Yurk. The bully rewarded. Seriously? Hum, this element is missing to make Saint Esther a perfect marthyr figure. Btw this twitter account has allways been a bad idea, not funny and too easy a target...
  6. Cheshire

    Ongoing ME/CFS studies

    Exercise studies Cardiopulmonary Exercise Testing as a Diagnostic Tool and a Quantitative Measure of Post-exertional Malaise in Myalgic Encephalopathy/Chronic Fatigue Syndrome Lead researcher: Per Ole Iversen University of Oslo Study Start Date: June 2014 Estimated Study Completion Date...
  7. Cheshire

    Approaching recovery from myalgic encephalomyelitis and chronic fatigue syndrome (2017) Devondorf, Jason et al

    The authors did a very similar paper with interviews published a month ago: http://sci-hub.bz/http:/www.tandfonline.com/doi/abs/10.1080/09638288.2017.1383518...
  8. Cheshire

    Unrest - reviews and general articles

    About ME: Shining a light on a debilitating disease many believe doesn't exist https://www.irishtimes.com/life-and-style/health-family/about-me-shining-a-light-on-a-debilitating-disease-many-believe-doesn-t-exist-1.3299856#.Wh1mtEH5sVk.twitter
  9. Cheshire

    Phase III Rituximab Trial - News

    ME Association Statement: Negative phase III clinical trial result from Norway for Rituximab in ME/CFS http://www.meassociation.org.uk/2017/11/me-association-statement-negative-phase-iii-clinical-trial-result-from-norway-for-rituximab-in-mecfs-27-november-2017/
  10. Cheshire

    What treatment trials for ME/CFS are currently ongoing?

    Added (in red to avoid confusion with the title, I tried to choose a not too agressive red)
  11. Cheshire

    What treatment trials for ME/CFS are currently ongoing?

    I just created a new thread listing ongoing studies. It's the first draft and I'd like to get your feedbacks to have the most uptodate list. So do not hesitate to signal any ongoing study not yet listed. Signal any error (spelling, broken link...) There are several studies that could be listed...
  12. Cheshire

    Ongoing ME/CFS studies

    Multidimensional studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the National Institutes of Health Lead researcher: Avindra Nath National Institute of Neurological Disorders and Stroke (NINDS) Study Start Date: January 21, 2016 Estimated Study Completion Date: September 15, 2020...
  13. Cheshire

    ‘Healthy Privilege’ – when you just can’t imagine being sick

    An old article, but I just came across it. This article talks of some of the problems we encounter because people do not understand what we're dealing with. The author refers to this as "the healthy privilege" (as described by psychologist Dr. Becker-Schutte)...
  14. Cheshire

    What treatment trials for ME/CFS are currently ongoing?

    I am currently doing a list of ongoing trials for the Science Library (treatment and research), but it's very time consuming and complex!
  15. Cheshire

    Nimodipine - use in ME

    @Dechi has been using nimodipine IIRC.
  16. Cheshire

    My e-letter on PACE Trial: More data demonstrating why the SF-36 PF threshold of 60+ is problematic

    Thanks @Tom Kindlon Another incongruity to add to the list. Logic and coherence are definitively not required to lead a trial in certain circles.
  17. Cheshire

    Article: What’s worse? Doctors who believe homeopathy or just use it for placebo effect

    Yes, France seems to be the country where homeopathy is the most used (36% of the population!). 17% in the UK, 7% in Germany, 14% women and 10% of men in Italy prefer homeopathic medicine to conventional medicine, 15% in Spain. In Switzerland, in a survey, a total of 3,126 adult patients...
  18. Cheshire

    Article: What’s worse? Doctors who believe homeopathy or just use it for placebo effect

    Edit: this article reviews a very interesting survey sent to Zurich GPs. https://arstechnica.com/science/2017/11/whats-worse-doctors-who-believe-homeopathy-or-just-use-it-for-placebo-effect/
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