About the problem of subjective vs more objective outcomes, there's also @Graham 's paper:
Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome
Graham McPhee
June 19, 2017
Journal of Health Psychology
http://journals.sagepub.com/doi/abs/10.1177/1359105317707215
by James C Coyne November 15, 2017
https://www.coyneoftherealm.com/blogs/mind-the-brain/stop-using-the-adverse-childhood-experiences-checklist-to-make-claims-about-trauma-causing-physical-and-mental-health-problems
Persistent pain: assessment and management
https://www.nice.org.uk/guidance/indevelopment/gid-ng10069
Don't post here, there's a thread yet https://www.s4me.info/index.php?threads/nice-looking-for-lay-member-for-persistant-pain-guideline-committee-closing-date-22nd-november.1028/#post-17679
Biopsychosocial view of ME and CFS
*Royal Society of Medicine “Chronic Fatigue Syndrome” Conference - 2008
CBT and GET - Professor Rona Moss-Morris
Royal Society of Medicine “Chronic Fatigue Syndrome” Conference
Professor Rona Moss-Morris
2008
Link to video
Epidemiology
Royal Society of...
*Advocacy
6 Ways to Maximize Your Congressional Advocacy Impact
Solve ME/CFS
2017
Join Advocacy and Engagement Manager Emily Taylor to learn 6 ways to maximize your advocacy impact and hear about SMCI’s 2017 congressional advocacy strategy.
Link to video
ME/CFS Advocacy Week: Local Action...
Documentaries/TV report
*Documentaries
I remember ME
Kim Snyder
2000
Link to information
Link to documentary
Voices from the shadows
Natalie Boulton and Josh Biggs
2012
“Voices from the Shadows” shows the brave and sometimes heartrending stories of five ME patients and their carers, along...
*Sleep
ME and sleep disorders
Wetenschap voor Patienten - ME/cvs Vereniging
Kenny de Meirleir
2013
Link to video
Can ME CFS and Fibromyalgia Research Help You Sleep?
Dr. Lucinda Bateman
Solve ME/CFS
2014
Dr. Lucinda Bateman tells us about the body systems that regulate and affect sleep and how...
Biomedical Research in ME/CFS
*Metabolism
ME, exercise and the mitochondria
Wetenschap voor Patienten - ME/cvs Vereniging
Dr. Charles Shepherd
2014
Link to video
Research into Mitochondria & M.E.
Dr Karl Morten
2016
Link to video
S4ME thread
Mitochondria not Hypochondria
CCDP
2016
Link to...
Biomedical Research in ME/CFS
*Research overviews
The Latest Research on CFS (Lecture)
Massachusetts CFIDS/ME & FM Association
Anthony L. Komaroff, MD
2013
Link to video
Action for M.E. AGM 2013
Action for ME
Stephen Holgate
2013
Link to video
One Person's Highlights of the Biological...
Trial By Error: The Surprising New BMJ Best Practice Guide
13 November 2017
By Steven Lubet and David Tuller, DrPH
http://www.virology.ws/2017/11/13/trial-by-error-the-surprising-new-bmj-best-practice-guide/
Edit: thread...
Chronic fatigue syndrome is not imagined but a genuine illness: Study
http://www.worldnews.easybranches.com/regions/asia/chronic-fatigue-syndrome-is-not-imagined-but-a-genuine-illness-study-435307
Patients with Gulf War Illness, Chronic Fatigue Syndrome Show Distinct Molecular Changes After...
Severely affected ME (Myalgic Encephalomyelitis) analysis report on questionnaire
25% ME Group (UK)
2004
Link to survey
ME 2008: What progress
Action for ME and Association of Young People with ME (UK)
2008
Link to survey
Ervaringen van de achterban van patiëntenorganisaties met de...
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