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Not implying that people who disagree with you are not intelligent enough, naïve or that what they say is systematically misleading would be good start. Just saying.

@Graham made a video about funding in the UK.

Why are there so many case studies? Does someone know if it is something that was asked for the presentations?

I find it very confusing and not very convincing so far.

The survey was initiated at NICE demand so I guess they can't totally ignore it. https://www.s4me.info/threads/forward-me-group-minutes-–-21st-november-2018.7575/#post-134680 It's been done by an academic. So maybe, it will have more weight. Edit: crosspost with Gecko

Thread about the results here.

As a reminder, this is the survey that was launched to be presented to NICE in the context of the ME/CFS guidelines review. See this thread: https://www.s4me.info/threads/forward-me-group-cbt-get-survey-tell-nice-your-experiences.7611/

The new @dave30th 's article http://www.virology.ws/2019/04/02/trial-by-error-this-years-us-clinician-summit/

https://www.frontiersin.org/articles/10.3389/fimmu.2019.00796/abstract Full, open access, text here, https://www.frontiersin.org/articles/10.3389/fimmu.2019.00796/full ETA: Link to full text.

The 6 month results are not impressive.

https://paedmhassoc.files.wordpress.com/2018/11/mus-guide-with-leaflet-nov-2018.pdf p. 13 Is the patient still alive? Because it has been demonstrated that living is an important factor in perpetuating MUS. This is such a nonsense. And these people are classifying us as being irrational??

Simon Wessely had stated something similar in a comment under @Jrehmeyer article in statnews (edit, in 2016): https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/comment-page-6/#comments (page 2 of comments) It was really puzzling that he didn't realise how such a statement...

Thread about the ME Australia’s response to the draft report from the NHMRC here.

That speaks volume. Kids saying "doing too much doesn't help" is translated in "beliefs about activity contribute to the exacerbation of their CFS symptoms". NO, this is not a proof that the belief is driving the symptoms. None of the things they quote proves there's a causality between a...

;)

I think many would happily use a kind of oxymoron like "uncounscious malingering". And indeed the reference to secondary gains is symptomatic of it. It's not malingering, but the patient is finding advantages in being sick, but it's not really conscious, but maybe a bit....

To be precise, MS said that's how doctors view us. (but IMO, it's a way to say it without saying it. "Some say..." should always be followed by a firm condemnation, if not it remains ambiguous.)

https://notthesciencebit.net/2019/03/21/if-you-spend-20-years-gaslighting-your-patients-perhaps-you-should-think-twice-before-accusing-them-of-trolling-you/amp/?__twitter_impression=true

The exit door is wide open in front of them, but I'm not sure they see it nor that they have any strategy. When I see that Sharpe hangs on to his motto "read the paper", as if he believed that anyone was to be magically convinced of the validity of his work after reading (as it used to be during...