Really well put @StellariaGraminea and I agree it’s very hard to recognise let alone understand or accept things if we have neither experienced them nor been taught about them.
My top music tips are
BBC 3 Night Tracks
https://www.bbc.co.uk/programmes/m0008w2m
Max Richter Sleep
https://en.wikipedia.org/wiki/Sleep_(album)
I listen to the first when going to sleep with a timer to stop playing.
And if/when I wake up in the night have a Siri shortcut I can trigger to...
Great interview. Thanks to Chris and David. Really good to hear more about the project. Clearly a lot of work going on from a lot of people behind the scenes but the collaboration between AfME and Chris seems to continue to be really productive.
We’re lucky to have people like this working on...
It is indeed a big survey. But we have plenty of time to complete it and can save our progress. There’s also a version to print and they seem to be offeribg some phone support for people who need it. They were also great at engaging earlier on in the design process. Lots of positives here, well...
It’s a shame the factsheet hasn’t been read and there’s some misunderstandings here. I completely get what you feel and felt a bit the same at first tbh.
I wonder if there’s perhaps a difference or clash in style adding to things here? The length of the response and the point by point detail...
Some great comments by others which I support and @Nightsong highlights how important it is to get this right. And thanks to @TheDePaulGroup for the involvement and comprehensive responses so far.
While we’re discussing differences there is a lot of shared understanding in here too I think...
I don’t think so and this was the question I had in the other thread about mechanisms of resistance to daratumumab in multiple myeloma
There seems to be a lot of focus on NK cell quantity but less on other details which could be important here. I’d like to understand more or find out if studies...
I found this interesting in general and thought others would. A scientific development with potentially relevant applications and also ties in with recent discussion of usefulness of AI/ML. I also think it’s an area @Jonathan Edwards is very familiar with!
Microsoft AI Research has made a tool called Skala available for everyone to use. It was previously an internal research project. Here’s the new Azure Skala page.
What is this all about? There’s some info this webpage about the DFT research project
Most accessible is probably this blogpost...
Agree that focussing on predefined activities is the wrong path. Different people of different severities with different levels of support prioritise different things.
This just isn’t an accessible questionnaire, in size or structure. I gave up on it. I believe there will be self selection in...
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