United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)


The British Occupational Hygiene Society, the country’s leading workplace health protection body, has issued technical guidance on how healthcare employers make decisions about the appropriate Personal Protective Equipment to protect against airborne risks.
 
MEA Facebook:
Wales: Severe ME Difrifol Cymru need your support!

A couple of months ago, Severe ME Difrifol Cymru ran a stall at Y Farchnad (The Marketplace) where they were able to meet with many Senedd Members (MSs) about the issues facing people with severe ME.

Now they need MSs to make their support official – by actually signing up to give their backing to Adam Price’s Motion for a debate about Severe/Very Severe ME in Wales - https://record.senedd.wales/Motion/8884

If you live in Wales and would like to see this debate happen in the Senedd, then now is the time to help! Write to your MSs and encourage them to show their support to ensure the debate gets the backing it needs to take place.

Write to your MS: https://www.500milesfor.me/

#MECFS #pwME #SevereME #Senedd #Wales #WriteToYourMS
 


Post from user Hip_Ill on r/cfs:
The 1955 ME/CFS outbreak at the Royal Free Hospital in London was once erroneously claimed to be mass hysteria by disgraced psychiatrists McEvedy & Beard.

Now the mass psychogenic illness quacks have struck again, irresponsibly jumping to the conclusion that when 21 people suddenly fell ill at London Heathrow Airport on 8 September 2025, this was caused by mass hysteria.

In the Guardian newspaper, Dr Robert Bartholomew, a University of Auckland sociologist said: "what happened at Heathrow is almost certainly an episode of mass psychogenic illness that is anxiety-based".

Professor Simon Wessely was more guarded, and said that it was "a bit early" to come to judgments about the Heathrow event and it was unclear whether there was an unusual odour or what investigations were done to eliminate other causes. But he added: "If all these come to nothing, then yes, this may be an episode of what we now call mass sociogenic illness."

And in his Conversation article, Kit Yates, Professor of Mathematical Biology and Public Engagement at the University of Bath, goes with the mass psychogenic illness explanation for the Heathrow event.

Well it turns out that the Heathrow event was likely caused by someone spraying CS gas, and this person has now been arrested.

So these psychogenic illness quacks, who so quickly jumped to a conclusion about psychogenic causes, once again have egg on their faces.

Simon Wessely is of course famous for saying back in 1994 that: "ME is simply a belief, the belief that one has an illness called ME". Ref: here.
 
https://worcsmegroup.weebly.com/blog/yawn-a-play-during-mecfs-awareness-month

YAWN a play during ME/CFS AWARENESS MONTH
11/3/2025




YAWN will debut at the Cheltenham Fringe Festival, at 5.00 pm, on Tuesday 27 May.
Hollie Christian-Brookes, an actor-singer, with puppetry and stage combat experience has written original play 'YAWN' about living with ME/Chronic Fatigue Syndrome.

BBC: 'Play explores life with a hidden chronic illness'

'YAWN, written and performed by Hollie Christian-Brookes, a former Bath University student, charts the emotional and physical toll of Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).'

'Having played at the The Mission Theatre in Bath, YAWN will now travel to the Golden Goose theatre in London for the Lambeth Fringe on the 8 and 9 October.'
 
Tomorrow, Tue 7 Oct, the Welsh Senedd Business Committee will consider allocating 15 Oct to a Severe/Very Severe ME debate.
It has a good chance of being selected.
#pwME in Wales please help, email your MS and ask them to back MS Adam Price’s Motion.
Find your
1/2
local Constituency/Regional MSs: https://senedd.wales/find-a-member-of-the-senedd/

Personalise the template: https://www.500milesfor.me

Tell us: SevereME.Cymru@gmail.com

Diolch yn fawr / Thank you

2/2


 
Tomorrow, Tue 7 Oct, the Welsh Senedd Business Committee will consider allocating 15 Oct to a Severe/Very Severe ME debate.
It has a good chance of being selected.
#pwME in Wales please help, email your MS and ask them to back MS Adam Price’s Motion.
Find your
1/2
local Constituency/Regional MSs: https://senedd.wales/find-a-member-of-the-senedd/

Personalise the template: https://www.500milesfor.me

Tell us: SevereME.Cymru@gmail.com

Diolch yn fawr / Thank you

2/2
Worth its own thread in the advocacy forum, to get people to notice it and take action?
 
Xcretion by user @1goodtern:

tern @1goodtern Oct 8
Whatever you blame it on (and I mostly blame covid infections), can we agree something is going badly wrong?
Hospital episodes of treatment for assorted pathogenic infections, England, all ages, by year. From the top left:
Assorted mycobacteria
Amoebiasis
Nervous system viruses
Leptospirosis
Brucellosis
Listeriosis
Shigellosis
Diptheria
Bartonellosis
Data of chart is based on https://digital.nhs.uk/services/hospital-episode-statistics
 

Attachments

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NDM8884 - Member Debates​

Tabled on 24/04/2025 | For debate on 15/10/2025
To propose that the Senedd:

1. Notes that myalgic encephalomyelitis (ME) is a chronic and disabling illness at all levels of severity.

2. Notes that of those suffering from ME, 25 per cent are categorised by NICE as 'severe: mainly bed bound or housebound', and 'very severe: fully bedbound', requiring full-time care and, in the severest cases, palliative care and tube feeding.

3. Regrets that it is often those with the greatest severity levels of ME who are provided with the least amount of appropriate care and treatment.

4. Calls on the Welsh Government to:

a) respond to the concerns raised in the Coroner in England’s Prevention of Future Deaths Report, and explain what practical steps they will take to ensure that no patient in Wales will ever be placed in such tragic circumstances as those described in the report;

b) ensure that the Adferiad-funded ME services are making provision appropriate to the needs of patients with severe and very severe ME;

c) bring together an expert group of health professionals and people with lived experience, at a national level, to develop all-Wales guidance and quality standards on ME, including for the most severely affected;

d) make the appointment of an all-Wales specialist consultant for post-infectious chronic conditions - including ME and long COVID - a priority;

e) improve the training on ME for professionals, firstly in the NHS, but also in social services and schools: in particular, raising awareness of the care needs of adults and children with severe and very severe ME; and

f) ensure that health boards truly co-produce their ME and long COVID Adferiad services, taking into account the lived experiences of those suffering at the severest levels and of those caring for them.

Maeve Boothby O’Neill: Prevention of Future Deaths Report

Tabled By​

Member
Adam PriceCarmarthen East and Dinefwr

Supporters​


Altaf HussainSouth Wales West
Supported on: 17/06/2025

Cefin CampbellMid and West Wales
Supported on: 01/05/2025

Heledd FychanSouth Wales Central
Supported on: 05/09/2025

Jane DoddsMid and West Wales
Supported on: 28/04/2025

Joel JamesSouth Wales Central
Supported on: 29/04/2025

John GriffithsNewport East
Supported on: 08/10/2025

Llyr GruffyddNorth Wales
Supported on: 01/05/2025

Luke FletcherSouth Wales West
Supported on: 30/04/2025

Mabon ap GwynforDwyfor Meirionnydd
Supported on: 16/07/2025

Mark IsherwoodNorth Wales
Supported on: 29/04/2025

Mike HedgesSwansea East
Supported on: 30/04/2025

Rhun ap IorwerthYnys Môn
Supported on: 15/07/2025

Rhys ab OwenSouth Wales Central
Supported on: 02/05/2025

Sian GwenllianArfon
Supported on: 04/09/2025

Sioned WilliamsSouth Wales West
Supported on: 30/04/2025
 
2. Notes that of those suffering from ME, 25 per cent are categorised by NICE as 'severe: mainly bed bound or housebound', and 'very severe: fully bedbound', requiring full-time care and, in the severest cases, palliative care and tube feeding.
Severe is mainly bedbound. If you’re mainly housebound you’re moderate. This severely underestimates the number of bedbound pwME/CFS (assuming the 25 % is even correct).
 
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