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  1. Forbin

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Do we know if the patients they've tested have come from a variety of severity levels? I'm just thinking that severe patients might be more likely to be a homogeneous group, even though I'm sure that Stanford screens all patients to the extent possible.
  2. Forbin

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Dr. Phair has said that when he first started looking into ME/CFS he realized that if a genetic mutation were involved it would have to be relatively common. Why? Because only a common genetic factor could explain the outbreaks where the attack rates could be as high as 25%. He was also looking...
  3. Forbin

    Per Fink awarded the "Civil Courage" prize, Sept 2019

    The prize awarded to by the Jutlandic Medical Society for "Civil Courage" is not the same as the "Civil Courage Prize" awarded by the Train Foundation at http://www.civilcourageprize.org/. The former comes with a $3,700 dollar prize; the latter with a $50,000 prize. The Train Foundation holds...
  4. Forbin

    Per Fink awarded the "Civil Courage" prize, Sept 2019

    There seems to be an "official" organization that has trademarked the term "Civil Courage Prize," and its related symbol, in the U.S. http://www.civilcourageprize.org/ I get the feeling that this organization had nothing directly to do with the prize awarded by the Jutlandic Medical...
  5. Forbin

    Per Fink awarded the "Civil Courage" prize, Sept 2019

    This award may set some new kind of record for cluelessness (on a per fink basis, of course). Way to go Jutlandic Medical Society! :thumbup: /s [ETA: It's a $3,700 prize.]
  6. Forbin

    US: Winning and Waiting: A Federal Funding Update for ME/CFS, Sept 2019

    If these funds would be coming from the Defense Department budget, would that mean that research would be limited to military members who had ME/CFS, somewhat like Nancy Klimas' Gulf War Illness research? I suppose ME/CFS research could be attached to the DoD's GWI research program, as the...
  7. Forbin

    Viewpoint: “It’s All in Your Head”—Medicine’s Silent Epidemic

    I suspect that what patients actually hear more often than "It's all in you head" is something along the lines of "Maybe it's all in your head," or "Do you think it's possible that it's all in your head?" It's easy to dismiss a doctor who gives you an absolute like "It's all in your head." By...
  8. Forbin

    ME/CFS Alert: Ron Davis discusses his research at Stanford

    I thought this was a very informative interview, densely packed with information on a variety of subjects. Lewellyn King is clearly well-versed in recent developments and asks very pertinent questions. If one pays as close attention to the news as the members of this forum do, it may seem like...
  9. Forbin

    What does fold change mean?

    Never having had any occasion to refer to a fold change in real life, for a long time I assumed it was 2^x, where x was the number of "folds," as in folding a piece of paper equally. So, three fold of something would be 8 times the original, because, in my mind, if you folded a piece of paper...
  10. Forbin

    Article: Recovering from chronic fatigue syndrome as an intra-active process, 2019, Synne Groven and Dahl-Michelson

    The article appeared in the journal "Health Care for Women International," which had a 2018 "impact factor" of 0.788. https://www.tandfonline.com/toc/uhcw20/current Anyone want to take up the challenge of summarizing the Wikipedia page on agential realism?
  11. Forbin

    Article: Recovering from chronic fatigue syndrome as an intra-active process, 2019, Synne Groven and Dahl-Michelson

    Just who are these "nonhuman agents," and what kind of commission do they get when they sell your house?
  12. Forbin

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    And talk about "cost effective"... a quick Google search shows that you can get a voodoo practitioner to cast a spell for as little as $300! [Possibly less if you have a coupon.]
  13. Forbin

    Quantitative Electroencephalographic Assessment of ME/CFS. Support for a novel diagnostic protocol, 2019, Pellegrini. Student thesis.

    There seem to be some psychiatrists who are promoting the use of QEEG as a way of accurately distinguishing one psychiatric condition from another. This 2018 article, however, says that it's important for psychiatry to distinguish QEEG's promise from the "hype." QEEG Recordings Not...
  14. Forbin

    Maureen Hanson talk at OMF Symposium 2019

    As @andypants said, the video of Dr. Hanson's talk makes it clear that she's making a tongue-in-cheek suggestion that ME/CFS must be caused by a "genius virus" because the illness it produces is not taken seriously, thus ensuring the survival of the "virus" due to the lack of interest in...
  15. Forbin

    Denmark: Interview with Per Fink in Dagens Medicin

    The old "This food is terrible - and such small portions!" defense.
  16. Forbin

    Maureen Hanson talk at OMF Symposium 2019

    I think they'd be on safer ground claiming that it's triggered by an "exposure" to something. That would cover viruses, bacteria, parasites and fungi, as well as things like toxins - all of which could occur in a localized "outbreak." I believe the leading theory on GWI is toxic exposure (which...
  17. Forbin

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    A couple of times, Ron Davis mentioned that they were hindered because they didn't have access to a "high-end" mass spectrometer. I wonder how expensive such a device is. From what little I've seen, the "high-end" that shows up on the internet seems to be between $100K-$200K. Of course, the...
  18. Forbin

    Sensory sensitivities: research and theories?

    That's interesting. Sensitivity to the eye drop may vary from person to person. Every time my eyes are dilated (most recently a month ago), I'm effectively blinded by the bright sunlight when I step out of the optometrist's office. I have to wear one of those disposable sun shields they give you...
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