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Oh, great. So now if you have a brain tumor, you should be OK with your doctor telling you "it's all in your head," because, you know, that's a technically accurate statement. People with ME/CFS clearly don't object to the notion that the disease involves "abnormalities in the nervous system...

I've posted about this phenomenon on other threads (and on other forums). I've experienced this effect on a couple of other occasions. I believe author Howard Bloom has credited sleeping in four hour chunks with helping to improve his ME/CFS. It seems as though something may be going on late...

I think they're saying that dizziness and lightheartedness can occur in some ME patients both while standing and while recumbent, so one shouldn't assume that they are OI symptoms without checking to see if they also exist while recumbent. If you get dizziness symptoms regardless of position, I...

As a first step, it might be best to use machine learning to create a highly accurate computer model of a mouse.

Article from the Science Magazine website : https://www.sciencemag.org/news/2019/06/chronic-fatigue-scientist-fired-after-conduct-complaints-stanford-says Pretty much the same limited information. Includes a brief comment tweeted by Hillary Johnson.

Yes... DON'T TAKE THE BAIT!

The first 2/3's of this video are about the challenges of building standardized data sets. At about 21:45 he begins to talk about some studies related ME/CFS. Much of this seems preliminary, but, to be honest, it's mostly over my head. :)

The worldwide estimate of 17 million cases seems to come from applying Jason's prevalence value (422 per 100,000 adults) to the adult world population (over 18) between 2002-2004. The adult world population has grown since then, so it would've been close to 21.6 million cases in 2018 (maybe 24...

An odd thing I recall about the Rituximab trials was that, of the patients who improved, many did not start to get better until months later. Fluge and Mella had a hypothesis for why this might be, but, since the trial ultimately turned out null, it remains an odd delay for a placebo effect. I...

This may be a dumb question, but I wonder if one can have the "structural potential" for ongoing brainstem compression, but it takes some kind of event like physical trauma or brain swelling from an infection to initiate this compression. I'm thinking that once it happens maybe this kind of...

Here's a 2012 article from Scientific American: How Has Stephen Hawking Lived Past 70 with ALS? The article focuses on the variable nature of the disease, which includes a slowly progressive form that has a juvenile onset. The thrust of the article is that Hawking was indeed an outlier, but...

If it passes both houses it would most likely be a "concurrent resolution." If so, a concurrent resolution would not have the force of law - but it seems like it might carry some weight during budget appropriations, as the resolution says "recognize and affirm the commitment of the United...

I'm wondering if there is any data on the prevalence of asymptomatic CCI or AAI. The Medscape article below says: It also says: The issue being that if some significant portion of the population has asymptomatic CCI or AII how can you tell if a positive finding on imaging is causing ME/CFS...

Ah, that's better.

I wonder if the NIH intramural clinical study attempts to rule out CCI. I assume this would require MRI/CT scans of this area of the head/neck.

I'm curious about how this condition could be triggered (or perhaps "unmasked") by an infection. Jennifer has written that she believes her trigger was an infection.

I missed this when it was first posted. Truly excellent work! :thumbup:

I was diagnosed with scalp eczema a couple of years prior to ME. This seemed to morph into a diagnosis of scalp psoriasis about 10 years after the onset of ME. Fortunately it is intermittent and confined to the scalp. It seems that people who have psoriasis are more likely to have Crohn's...

There was an article on this research in Scientific American last September: Brain’s Dumped DNA May Lead to Stress, Depression The article doesn't get into this, but could the biological stress caused by the immune system's reaction to mitochondrial DNA in the bloodstream wind up causing the...

FWIW, I made the chart below from the results of Leonard Jason's 1999 study "A Community-Based Study of Chronic Fatigue Syndrome." It shows the prevalence rates that he found for various groups. The three vertical dots show the prevalence rate per 100,000 people surrounded above and below by...