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  1. Forbin

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I have no idea if it was linked there before , but now, dated April 18th and headed with the addendum "(Adds David Tuller's academic position at Berkeley)," a link to it has been posted as if it were new at "The Drudge Report." http://news.trust.org/item/20190418094429-rl1l2 ETA: It looks...
  2. Forbin

    Trial By Error: Crowdfunding, Week 2; and more Sharpe and Chalder

    Oddly enough, when I Googled "Lost in Space" images, I got this...
  3. Forbin

    Trial By Error: Crowdfunding, Week 2; and more Sharpe and Chalder

    Oh, yes.. ...and there's the 1991 "Simpsons" version: Part One and Part Two.
  4. Forbin

    Suddenly my head spins

    If it was a great deal of water, there might be a connection. I've seen several sources that say drinking more that 0.8 to 1.0 liters of water per hour of can reduce your blood's sodium concentration enough to cause hyponatremia (low sodium). The intake threshold probably varies somewhat due to...
  5. Forbin

    Update from Ron Davis April 2019 Interview with BenH

    Re: Sweating Among the symptoms listed in the CCC is: I had night sweats early on, but then later I developed a sort of overreaction to changes in temperature. If I walked from a mildly cold outdoor environment to a warmer indoor location, I would start to sweat - a lot - for about half an...
  6. Forbin

    Update from Ron Davis April 2019 Interview with BenH

    I wonder if this "particle" might also be found in healthy controls, just at a lower concentration. "The dose makes the poison," as Paracelsus said.* (*Yes, I had to look that up.)
  7. Forbin

    Exosomes

    I don't think Ron Davis has given a size estimate other than to say "it's big." My impression when he talks about breaking it apart and seeing what it's made of is that he's talking about a "particle" made up of many molecules as opposed to just one large molecule. I found some quotes on the...
  8. Forbin

    Update from Ron Davis April 2019 Interview with BenH

    I'm not sure. Filtering the blood of ME patients until the signal disappeared would be a different experiment.
  9. Forbin

    Update from Ron Davis April 2019 Interview with BenH

    @roller* Going by the chart below, there were at least 20 patients and twenty controls. It looks like all of the CFS patients produced a signal and none of the controls. According to Dr. Davis, the odds that this does not represent a real difference between the two groups is a billion to one...
  10. Forbin

    Update from Ron Davis April 2019 Interview with BenH

    At about 16:15, Ron Davis talks about trying to figure out what's in the blood serum that distinguishes patients from controls on the nano-needle impedance test: The section where he begins to talk about the paper is here at 13:30.
  11. Forbin

    Orthostatic intolerance

    If you mean that the tachycardia of POTS may be an anxiety/stress response to the symptom of OI, whatever the cause, I'd argue against that for the simple reason that, for me at least, the tachycardia would precede OI. It didn't happen to me immediately after onset, but, by three years into the...
  12. Forbin

    Brain throwing a party before bed - not pleasant

    I realize that you're not talking about dreaming, but when I googled "rapid images dreaming" the first thing that came up was a forum for lucid dreamers where some people were reporting this kind of thing. http://ld4all.com/forum/viewtopic.php?t=37401 It's interesting that the first post is by...
  13. Forbin

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    If there "something in the blood," I wonder if that might be related to why patients feel better following an infusion - i.e. the blood becomes more dilute, possibly reducing the concentration of "x" to below some kind of symptomatic threshold. Similarly, if patients have low blood volume, then...
  14. Forbin

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    I didn't have trouble live-streaming this, but that may be because I was watching it at a relatively low bit-rate. In my experience, it's fairly unusual to have multiple bit-rate streams available during a "livestream." This suggests that they have multiple processors/computers generating each...
  15. Forbin

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    I only had the opportunity to see a few of the presentations, but I was really impressed by Dr. Systrom's talk. It struck me as a real tour de force of how to effectively convey a lot of complex information in a short time.
  16. Forbin

    Brain throwing a party before bed - not pleasant

    I've experienced something similar once or twice, though, for me, it seemed to be more of a dream. Basically, my mind was just jumping from one unrelated image/thought to another every second or so. In my case, this first happened the evening I tried taking L-tryptophan for the first (and only)...
  17. Forbin

    ME from stress ?

    I think that stress can reactivate some dormant viruses. It seems to be true of the herpes simplex virus which can remain dormant among neurons. This article explains how it can occur. Apparently, corticosteroids, like cortisol, can open a pathway that allows the viral DNA to "unwind" enough to...
  18. Forbin

    A Timely Multidisciplinary Update on ME/CFS, 2019, Theoharides

    Well, he's out of Boston, and I'd be willing to guess that very few doctors in the US ever heard of ME before they heard of CFS. I became ill in the early 1980's and no doctor (not even my neurologist) ever mentioned "ME," just a vague notion of a post-infectious syndrome. "CFS," of course, was...
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