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It's sad to read that she partly blames herself for the 'brain retraining' not working (she wonders if she was too resistant to it). She describes a lifetime of doubting herself and getting doubt and blame from others - after that it's understandable that she feels that she has failed the...

The semantics are a distraction from two inescapable facts: 1. Nobody should be wasting the resources of the healthcare system or of patients on interventions that have no evidence of efficacy, whether that's graded activity (as currently promoted by BACME) or crystal healing or ear seeds or...

Whether or not we accept the definition of rehabilitation as '90% of any healthcare activity', the important thing is that 'healthcare activity' shouldn't be ineffective or harmful, and that's the point of the open letter (which he hasn't got round to addressing).

The authors of the LISTEN trial said this about their work: Yet it's being used as the "evidence base" for this intervention they're promoting at this conference of the people running LC care. Imagine if informed professionals at the conference boycotted the session and instead went into...

Bridges self-management https://www.bridgesselfmanagement.org.uk/about/underpinning-theory/ The reference for 'one of our recent studies in people with long Covid' is this: https://www.bridgesselfmanagement.org.uk/research/research-projects/listen/ S4ME thread here. (We were underwhelmed.)...

I do wish that '200 symptoms' factoid would die. But journalists seem to love it.

The people in charge of local-level ME/CFS and Long Covid services need to see this.

"AI"-generated text that creates a superficial impression of authoritativeness based on nothing. Sick people deserve so much better than being patronised like this.

Anything interesting to see here? Familiar names among the authors, including some who it has been suggested may have been prone to methodological shenanigans elsewhere.

If they see PEM as an afterthought and not part of the 'symptomatology [and] functional impact', they have no business advising patients.

Then he honked his clown nose and the wheels fell off his car.

LOL.

This reminds me of the study linked here https://www.s4me.info/threads/miscellaneous-research-thread.43053/page-2#post-673146 'Smartwatch-derived versus self-reported outcomes of physiological recovery after COVID-19, influenza, and group A streptococcus: a 2-year prospective cohort study'...

That's definitely not from The Great Gatsby. People on Metafilter think it originated in a review on Goodreads in 2012 or thereabouts. https://ask.metafilter.com/330717/Who-really-said-it

Unfortunately I find this sort of thing completely unreadable after the first few lines :laughing:

On the Youtube page it says: "Our apologies - unfortunately, due to a technical error, the captions file wasn't saved and we don't have capacity to generate them ourselves given the webinar's length." which is a pity, for those of us not able to watch a 2h 38 video!

Moved post Not sure if this is the right place to post this, but it seems something to keep an eye on. https://www.timeshighereducation.com/news/three-uk-research-councils-suspend-funding-opportunities

Ref 18 is Linnhoff S, Fiene M, Heinze H-J, Zaehle T. Cognitive fatigue in multiple sclerosis: an objective approach to diagnosis and treatment by transcranial electrical stimulation. Brain Sci. 2019 May;9(5):100. https://doi.org/10.3390/brainsci9050100.

They say: (does that mean they think only severe patients get PEM?)

This site is selling an "intensive treatment" claiming to deliver "90% recovery" in one week.