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I think that was discussed here somewhere recently - maybe it was to do with these posts? https://forums.phoenixrising.me/threads/petition-opposing-mega.47466/page-44#post-786584 https://forums.phoenixrising.me/threads/petition-opposing-mega.47466/page-47#post-786677...

That's excellent to hear.

So ironic how Lloyd, self-proclaimed 'Australia's Leading Light' as regards ME/CFS, demonstrates lack of any understanding at all of what ME/CFS is. (Hint: Dr Lloyd, ME is not 'the extreme end of the fatigue continuum', it's something else entirely, something much, much worse than that. Why...

I noticed that. She had already given him her email address several posts earlier, yet he then tells her to contact him. Why should she have to make the first move, over something he wants to discuss? That's rude, and lazy, no matter what part of the world one is in! :rofl::banghead:

Wow, that makes it all the harder to understand why someone of that status would spend his time publicly insulting disabled people on Twitter. Mind = boggled.

Something I noticed, and I think others have too, is that whenever there is either a Parliamentary debate on ME or a major news article favourable to ME sufferers, someone suddenly turns up on social media spewing hatred at ME sufferers. Blanchflower's trolling appeared soon after the recent...

Blanchflower blocked me just for 'Liking' some of the replies to his troll tweet comparing his broken ankle to ME (if you missed that, he declared that because physiotherapy cured his broken ankle, then GET should cure ME, and any ME sufferer who disagrees is a 'whiner') - I didn't even post to...

The study is truly absurd and patronising drivel. I thought it had quietly dropped out of existence due to a combination of derision and lack of interest, so it's rather surprising to see that they're still trying to recruit. Still no/not enough takers, since 8/9/17? Gee, I wonder why that is.

Maybe because they're still thinking about how best to word their reply to make themselves look like they're still the experts and that the 'hoodwinked-by-anti-science-militant patients' MPs were conducting themselves unbecomingly. Still, we can hope they just keep quiet, for a change.

LOL, amen to that!

I completed the questionnaire (although I agree that it was hard to read with the tiny typeface and dense blue background). I, too, found some of the questions worded such that it was hard to answer them in a relevant way for someone with ME, for example the 'motivation' stuff - I simply...

Exactly what evidence-based treatment would that be, then? Still conflating ME/CFS with chronic fatigue, and still pushing her belief that either can actually be 'treated' with talking therapy. And we taxpayers still footing the bill for anti-science and potentially harmful twaddle. There...

Yes, this bit had me in stitches: LOL, opinionated science reporters. So, from the horse's mouth, an explanation as to why their science coverage is so cringemakingly biased!

Yes. A good friend who is a kind, sympathetic and understanding person, is currently unemployed and having problems finding a good job as opposed to terrible ones his Job Centre tries to foist on him. Feeling stressed out he said to me "You're lucky you don't have to work." After getting over...

She blocked me too - I had only just joined Twitter and been a member for a mere few weeks, when I discovered that she had blocked me! I don't know her, she doesn't know me, I've never had any contact with her, and I rarely ever post on Twitter at all, I mostly just Like/Retweet, so don't know...

Yes! All of those points exactly apply in my case too. And only since I became ill, never before. I even had one instance of phlebotomists putting tourniquets on my legs and trying to draw blood from my feet (which didn't work either), because they couldn't get any out of my arms. What seems...

Ah, it was dubiously obtained? There are copies of it dotted about all over the Net, but it's unfortunate if it can't be used to quote from - I guess because it has 'not for circulation' scribbled on the front page. I actually remember that quote being reported on when it was said back in...

There was also his statement during his speech at the 1994 Eliot Slater Conference that 'I will argue that ME is simply a belief, the belief that one has an illness called ME'. He probably doesn't have that one catalogued on his site, LOL.

Prof Sharpe has just deleted his tweet where he said ME patients are surely too ill to produce so many complaints and FOI requests. So now in the many replies, his tweet is missing. A few folks had already screenshotted it, though, such as: And also such as Lucibee's post #77 earlier in this...

Same here, wonder what that's about? Hopefully someone just mistakenly copied the new page's format from an existing one on schizophrenia and forgot to change it, and not that NICE really thinks ME is psychiatric despite their not mentioning psychiatric hypotheses!